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  2. Pyruvate Dehydrogenase Complex Deficiency
  3. Advice
Started Ketogenic Diet at 2 weeks old under the close supervision of a biochemical genetics dietitian.
by Erin
Ketogenic diet
by Jemma
Ketogenic diet
by Louise
Plugged into the Biochemical Genetics Department at Seattle Children's hospital.
by Erin
Facebook support group
by Jemma
Positioning
by Louise
Taking the "mito cocktail" to help with management of the progression of the disease.
by Erin
Freya foundation/Lily Foundation support
by Jemma
Respiratory stimulant and careful oxygen administration
by Louise