Recurrent Respiratory Papillomatosis

RRP BEING TREATED WITH CIDOFOVIR

Hi,   I strongly suggest you find a doctor who can administer this drug to the virus. My vocal cords were very bad and I could bearly speak for over 6 months. After my first injection I have 90% of my voice back after 5 days. I avoided las...

Views: 451 Jun 9, 2017, 6:30 PM by dfitzger

NICOLE'S STORY

My son is 9 years old and was first diagnosed when he was 4 years old. He has had 29 surgeries to date. As he has been getting older, the number of surgeries he has each year is going  down.

Views: 338 May 29, 2017, 7:52 PM by Nicole

ALYVIA

My daughter was very quit when she was born.  We took her to a local ENT in Evansville, IN where we live.  The Dr said nothing was wrong with her, after many and many of scopes.  There was definitely something going on, as we couldn't even hear he...

Views: 329 May 29, 2017, 3:36 PM by Janelle6880

FROM A MOM'S PROSPECTIVE

My son was born quiet. He didn't make much noice when he cried, and the DR's took him away for a bit to check him out. He came back awhile later and we were told it was normal for babies to have fluid in their lungs and have to clear it out. We notic...

Views: 308 May 20, 2017, 8:57 PM by TWD

RECURRENT RESPIRATORY PAPILLOMATOSIS

Views: 159 Sep 24, 2019, 12:44 PM by Vanessa

ADULT ONSET RRP AND MENTAL HEALTH

Hi there... I've seen research that indicates RRP and depression are connected. I was diagnosed with RRP as an adult after years of testing for other related possibiliites. During that time, I experienced mental health issues (anxiety and depres...

Views: 183 Sep 4, 2021, 9:42 AM by tbrock

DISABILITY

I am having the hardest time finding any information about filing for disability with RRP. Has anyone filed for disability and willing share their experience or any information relating to this process.  Thanks for reading and I hope to hear back fr...

Views: 111 Aug 31, 2021, 11:54 AM by tbrock