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What is the life expectancy of someone with Relapsing Polychondritis?
Life expectancy of people with Relapsing Polychondritis and recent progresses and researches in Relapsing Polychondritis
It depends on the are being affected. If your trachea is affected you could die if you don't get to the hospital in time. It can affect your heart as well and any other organs. No one knows how long we will live.
Posted Apr 26, 2017 by Freya 1000
If given the correct medication and health care there is no reason to believe life expectancy is Any different. Obviously where airways are affected then this is the most life threatening
Posted Apr 27, 2017 by Lisa Matthews (Lissy) 4800
Not sure but taking in consideration the new medicines and bilogics i believe that RP will not be a fatal dicease in the near future.
Posted Apr 27, 2017 by Laoura 2050
No one really knows the answer to this question. There is not enough research to answer this. Medication advancements change things, so who knows. I depends on how an individuals body is coping and what areas are affected.
Posted Aug 9, 2017 by Louise C 1450
I honestly believe something else other than RP may "get me". I didn't believe that when I was younger by the way but being almost 60, I do.
Posted Aug 14, 2017 by Susan 2000
I have no idea. It would depend on the degree of seriousness with your RP and what areas of your body are affected. Of course, the throat is dangerous. That is probably our worst fear.
Posted Sep 1, 2017 by Diane 2050
Not sure. They say 5 years. But I have had this diagnosis for 9 years and doing well.
Posted Jun 11, 2019 by [email protected] 1000
Lessened by 5-10 years with no help. Less by a few years with help
Posted Jun 12, 2019 by Tmrcarlson 3550
The life expectancy is better now than previously reported in research papers as you will read on the internet. The highest risk with Rp is when there is tracheal or heart involvement or organ involvement like kidneys and liver. A lot of people in the support groups have reported having the disease 20+ years.
Posted Jun 12, 2019 by Kaz 3000
I have kidney involvement at age 38, now on 1st transplant, also being affected. The research shows 10 yrs w kidney involvement
Posted Jun 30, 2019 by Missy 100
There is no life expectancy. This disease will wax and wane
Posted Dec 30, 2019 by Leanne 2500
It depends on what area is affected, usually good but if airways are affected it can be more problematic
Posted Dec 30, 2019 by Carrie 3050
If you survive the first three years, you will most likely live 5 to 10. If you survive 15 years, you stand a pretty good chance of 25-35. That said, I have survived 34 since the first relapse. I hope for another 9 years.
Posted Mar 20, 2022 by shlawver 2500
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Some articles that I read, the speech 5-7 years of survival,but in fact no one of this information.
It was all very vague
It was all very vague
Posted Oct 2, 2017 by Ana Luiza Bottura 2000
Translated from spanish
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You can live a long, your life does not change... only now you have to be more cautious with your body
Posted Oct 2, 2017 by Kevin Ochoa 2000
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With new drugs I think the life expectancy is similar to that of any person if there are no complications of the trachea or the heart
Posted Oct 2, 2017 by Sandra 950
