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Retinitis pigmentosa
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Retinitis pigmentosa
Advice
Advice of Retinitis pigmentosa
Being a part of a support group, while my family cares and tried their best, it feels good to talk to people who know exactly what I am going through.
by Sara
Wearing UVA/UVB filtering glasses reduces damage that accerates the progression of RP
by Julie
Networking with people with the same problems and learn from them to accept the Syndrome
by Dario
Working for a company that gave me the opportunity
by Angel
Always hoping for a cure
by Bridget
Friends
by jannice
Telling my story
by Brandi
A good sense of humor
by X. Pluto Brand
usher syndrom
by Rodrigo
I write. I have a blog where I write about my life with RP. (I have Usher's syndrome, so I actually write about my life as deafblind.) Writing is also recommended as: 1) Therapy for yourself 2) A way to inform others.
by Tina
The support of others with my disease
by Bill
Enjoy the present day
by Anne
Friends that understand and are willing to make changes to continue being your friend.
by Ian
i have a boyfriend who has rp. So i feel comfortable myself. we can understand each other.
by Yelda
Call your doctor everytime you feel bad.
by Fanny
Learn as much as you can about your condition so you can be your own advocate
by Ted
Estabishing a network of drivers so I can attend events at night.
by Pat Cameron
prayer and faith
by Dawn
To travel is to live
by Sarah
Continuing to do the things I love and not letting it stop me.
by Damian Klinkenberg
Good friends that understand and are helpful for rides and companionship
by Amanda
Finding a support group and even a local family with a child that has the same syndrome
by Macayla
Mi familia
by Alberto
enjoy life , by living
by christina
L9ve my dogs
by Cindy
Abstaining from alcohol.
by Andrea
Support from family and friends
by Susan
I am using iodine eye drops
by Filip
Focusing really hard
by catysdad
Haveing people and family understand what im going through
by green00s1
Learning to not worry about what others thought
by Kate
Learning to not worry about what others thought
by Kate
Stayin' alive
by Peter
Dios que a pesar de mi reniego por esto……el me.dalos animos
by Omar
My mum and partner and son are amazing and understanding
by Claire Carter
I use special software at work to help me see
by Ziqgi
Meeting a person, Gail, who also has RP
by azkaren
Very supportive family.
by Dawn
Having my white cane which is my soul mate lol
by Sonia Jane Farrimond
Talking about it and sharing stories with others
by SHAINI
Summer hours, longer days!
by Brian Austin
Influenced by a friend who is in Heaven, now. Todd Harmon, went blind around 8yrs old, LIVED while on earth. Heaven he can SEE!
by Tiffany B Nabors
Accept that I cannot stop RP but it will not stop me for reaching my goals
by Tracy
Doing things that "blind people can't do". Because there is nothing we can't do! Don't ever let people tell you that you can't do something,
by Sara
Eating foods rich in antioxidants can't hurt
by Julie
create noisyvision.org
by Dario
My faith in God
by Angel
Always believing in a miracle
by Bridget
Faith
by jannice
The support and love of my fiance & mother
by Brandi
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