Being a part of a support group, while my family cares and tried their best, it feels good to talk to people who know exactly what I am going through.
Wearing UVA/UVB filtering glasses reduces damage that accerates the progression of RP
Networking with people with the same problems and learn from them to accept the Syndrome
Working for a company that gave me the opportunity
Always hoping for a cure
Friends
Telling my story
A good sense of humor
usher syndrom
I write. I have a blog where I write about my life with RP. (I have Usher's syndrome, so I actually write about my life as deafblind.) Writing is also recommended as: 1) Therapy for yourself 2) A way to inform others.
The support of others with my disease
Enjoy the present day
Friends that understand and are willing to make changes to continue being your friend.
i have a boyfriend who has rp. So i feel comfortable myself. we can understand each other.
Call your doctor everytime you feel bad.
Learn as much as you can about your condition so you can be your own advocate
Estabishing a network of drivers so I can attend events at night.
prayer and faith
To travel is to live
Continuing to do the things I love and not letting it stop me.
Good friends that understand and are helpful for rides and companionship
Finding a support group and even a local family with a child that has the same syndrome
Mi familia
enjoy life , by living
L9ve my dogs
Abstaining from alcohol.
Support from family and friends
I am using iodine eye drops
Focusing really hard
Haveing people and family understand what im going through
Learning to not worry about what others thought
Learning to not worry about what others thought
Stayin' alive
Dios que a pesar de mi reniego por esto……el me.dalos animos
My mum and partner and son are amazing and understanding
I use special software at work to help me see
Meeting a person, Gail, who also has RP
Very supportive family.
Having my white cane which is my soul mate lol
Talking about it and sharing stories with others
Summer hours, longer days!
Influenced by a friend who is in Heaven, now. Todd Harmon, went blind around 8yrs old, LIVED while on earth. Heaven he can SEE!
Accept that I cannot stop RP but it will not stop me for reaching my goals
Doing things that "blind people can't do". Because there is nothing we can't do! Don't ever let people tell you that you can't do something,
Eating foods rich in antioxidants can't hurt
create noisyvision.org
My faith in God
Always believing in a miracle
Faith
The support and love of my fiance & mother