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Retinitis pigmentosa stories
It's pretty simple.
Started when I was 22 or so. My mom has RP and my sister has vision trouble as well. I knew I had RP rather soon after but spent years fighting the changes I needed to make to my lifestyle. Hell, I still do. RP folks tend t...
Views: 684 Mar 3, 2016, 6:12 AM by Ian
I was diagnosed with autosomal dominant Retinitis Pigmentosa when I was 14. I inherited it from my dad. I was declared legally blind (less than 20 degrees of vision) when I was 20. I am currently 28, and I have 5 degrees left. I also have cystoid mac...
Views: 616 Mar 3, 2016, 2:04 PM by Sara
I'm not going to write personal information here. But I do encourage you to contact me if you have RP or Coats Disease. I have never met or known anybody else who has Coats, so that would be particularly interesting. We might be able to share informa...
Views: 606 Mar 3, 2016, 7:57 PM by Ted
Autosomal Recessive RP - gene PDE6B pathogenic mutation heterozygous (c.892C>T (p.Gin298*))
I was diagnosed with RP in 2012, aged 32, after my boyfriend at the time insisted I go and get my eyes checked. He once brought me a glass of water ...
Views: 604 Mar 3, 2016, 3:00 PM by RP Amsterdam
Father of a beautiful girl, 7 years of age with RP
Views: 584 Mar 29, 2016, 3:31 AM by Wilco
Retinitis pigmentosa forum
how can you live with this disese?
Views: 471 Mar 3, 2016, 12:31 PM by Yelda
Another question... Do you still have a job? Or is it too difficult to work with your RP? I do have a job, but it is not so easy and it is very exhausting for my eyes...
Views: 463 Mar 6, 2016, 6:03 AM by Sarah
I love to travel! I have a vision of only 3°, but I really want to see the world! The noises, the smell, the kind people, to be on the road, I love it! Where have you guys been to and what are your favorite destinations?
Views: 434 Mar 5, 2016, 2:21 PM by Sarah
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