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Celebrities with Retinitis pigmentosa

What famous people have Retinitis pigmentosa? Find out which celebrities, athletes or public figures have Retinitis pigmentosa.

Celebrities with Retinitis pigmentosa

Retinitis pigmentosa (RP) is a rare genetic disorder that affects the retina, leading to progressive vision loss. While it is not commonly discussed, there are a few celebrities who have been open about their diagnosis and their journey with RP. These individuals have used their platform to raise awareness about the condition and inspire others facing similar challenges.



Celebrities with Retinitis Pigmentosa



1. Daryl Mitchell


Daryl Mitchell, an American actor known for his roles in popular TV shows like "The John Larroquette Show" and "NCIS: New Orleans," was diagnosed with RP in 2001. Despite his vision loss, Mitchell has continued to pursue his acting career and has become an advocate for disability rights. He uses a wheelchair due to a separate accident that left him paralyzed from the waist down, but his positive attitude and determination have made him an inspiration to many.



2. Sam Barks


Sam Barks, a British actress and singer, rose to fame as a finalist on the reality TV show "I'd Do Anything" in 2008. She later gained international recognition for her role as Éponine in the film adaptation of "Les Misérables" in 2012. Barks was diagnosed with RP at the age of 16 but has not let it hinder her career. She continues to perform on stage and screen, showcasing her incredible talent and proving that RP does not define her.



3. Tommy Edison


Tommy Edison, also known as the "Blind Film Critic," is a popular YouTuber and film critic who happens to be blind due to RP. Despite his visual impairment, Edison provides insightful and entertaining movie reviews, offering a unique perspective on the cinematic experience. His channel has gained a significant following, and he has become an influential figure in the online community, challenging stereotypes and misconceptions about blindness.



4. Moira Kelly


Moira Kelly, an American actress known for her roles in films like "The Cutting Edge" and "Chaplin," was diagnosed with RP in her early twenties. Despite her vision loss, Kelly has continued to work in the entertainment industry, both on screen and as a voice actress. She has also been involved in various charitable organizations, raising awareness and funds for retinal diseases.



5. Gordon Gund


Gordon Gund, an American businessman and former owner of the Cleveland Cavaliers basketball team, was diagnosed with RP in his thirties. Despite facing progressive vision loss, Gund has been a prominent figure in the business world and a dedicated philanthropist. He co-founded the Foundation Fighting Blindness, a non-profit organization focused on funding research for retinal diseases, including RP.



These celebrities have shown incredible resilience and determination in the face of retinitis pigmentosa. Their stories serve as a reminder that a diagnosis does not have to limit one's potential or define their success. Through their advocacy and achievements, they have become beacons of hope for individuals living with RP and other visual impairments.


Diseasemaps
2 answers
I heard Bono, U2s vocalist has it however i do not know definitely. I definitely know Steve Wynn has it.

Posted Jan 13, 2018 by Anders 2500

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Stories of Retinitis pigmentosa

RETINITIS PIGMENTOSA STORIES
Retinitis pigmentosa stories
It's pretty simple.  Started when I was 22 or so. My mom has RP and my sister has vision trouble as well. I knew I had RP rather soon after but spent years fighting the changes I needed to make to my lifestyle. Hell, I still do. RP folks tend to be...
Retinitis pigmentosa stories
I was diagnosed with autosomal dominant Retinitis Pigmentosa when I was 14. I inherited it from my dad. I was declared legally blind (less than 20 degrees of vision) when I was 20. I am currently 28, and I have 5 degrees left. I also have cystoid mac...
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AUTOSOMAL RECESSIVE RP - GENE PDE6B PATHOGENIC MUTATION HETEROZYGOUS (C.892C>T (P.GIN298*)) I was diagnosed with RP in 2012, aged 32, after my boyfriend at the time insisted I go and get my eyes checked. He once brought me a glass of water during ...
Retinitis pigmentosa stories
I'm not going to write personal information here. But I do encourage you to contact me if you have RP or Coats Disease. I have never met or known anybody else who has Coats, so that would be particularly interesting. We might be able to share informa...
Retinitis pigmentosa stories
Father of a beautiful girl, 7 years of age with RP

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Retinitis pigmentosa forum

RETINITIS PIGMENTOSA FORUM
Retinitis pigmentosa forum
how can you live with this disese?
Retinitis pigmentosa forum
Another question... Do you still have a job? Or is it too difficult to work with your RP? I do have a job, but it is not so easy and it is very exhausting for my eyes...
Retinitis pigmentosa forum
I love to travel! I have a vision of only 3°, but I really want to see the world! The noises, the smell, the kind people, to be on the road, I love it! Where have you guys been to and what are your favorite destinations?

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