World map of Rett Syndrome


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Rett Syndrome stories


MY DAUGHTER IS 19 YRS OLD AND DIAGNOSED WITH RETT SYNDROME


Taylor was diagnosed with Rett Syndrome at 2 1/2 yrs old.  She is atypical,  and still walking.  We have had many ups and down throughout the years, but I wouldn't trade it for anything. We have learned a lot about life, love and patie...

Views: 715 by Marcy Laird

ROMANE'S STORY


" Je m’appelle Romane, j’ai bientôt 9 ans. J’ai un grand frère, Léo, de 14 ans et une petite sœur, Anna, de 4 ans. Quand je suis née (le 17 novembre 2006), maman s’est rapidement inquiét...

Views: 639 by Romane

SKYLAR'S STORY


Www.gp2c.org/skylarb 

Views: 603 Nov 14, 2015, 7:45 AM by Skylar

IRENE


Irene was born perfect: she ate and slept well, was happy, laughed, spoke, walked. At about 18-20 months she started to spit out, repeat words, throw things away, scream. Doctors, neurologist, genetics, psyquiatrists, psycologists... I don't remember...

Views: 597 Feb 12, 2016, 6:21 PM by Blanca

EMA (TRISH IS MY MOM)'S STORY


Ema was born in December 2008 in Winnipeg Manitoba Canada. She is the youngest of 5 children. She has a micro-deletion on the 22.33 gene and has been diagnosed with having atypical Rett Syndrome with a unique MECP2 gene deletion. What we didn’t...

Views: 596 Jan 16, 2016, 1:21 PM by Ema (Trish is my mom)

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