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  2. Rett Syndrome
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My daughter changed my live in the good way
by Danielle
Music
by Sofie
Probiotics and Enzyme supplements helped my gut get normal. No constipation, no reflux.
by Allie
Gtube allowed me to have a consistent and improved diet.
by Dani
the unconditionnal support of my parents and brothers
by Ganimete
having moved in different countries ( France, UK, Germany) and schools
by Alexandra
3 mg de mélatonine aide Jasmine à dormir la nuit
by Jasmine
Gluten Free diet
by Ellie
Being part of an association. Faire partie d'une association.
by Bérénice
My daughter, Roxane, who has this desease, is 25 years and we make all is possible for her ! She seem's happy !
by SoAnn
Ocycarbazepine (generic for Trileptal) for seizures
by Beatriz
Ocycarbazepine (generic for Trileptal) for seizures
by Beatriz
Gtube
by Skylar
As teparias na Apae em São Caetano contribuiram muito para melhoria de nossa filha
by Emanuellle representada por sua mãe
Tobii
by Ida Sofie Brems-Larsen
Educated my self about the Rett and my spouse too
by Ashraf
My Tobii eye gaze helps me communicate and show my personality.
by E. Wood
Communication Alternative helped Irene to feel better
by Blanca
Estar informada sobre el Síndrome de Rett desde un principio
by Karin Colmán
eva nee en 2008 atteinte du syndrome de rett atypique
by Dorothee
One year with CBD OIL
by Menchu
Using eyetracker for AAC improved our level of communication and quality of everyday life
by T_Rex
Using my Tobii Dynavox helps me communicate
by Madelyne
I always loved my daughter
by Danielle
Happy peoples
by Sofie
Compression helps - even just a tight shirt, like Under Armour. Helps me feel more calm.
by Allie
Anti-convulsants have improved seizures
by Dani
the support of the "Association Française du Syndrome de Rett"
by Ganimete
being loved by my parents, sister and family
by Alexandra
Tobii I-12
by Beatriz
Tobii I-12
by Beatriz
Spinal fusion
by Skylar
A persistência e olhar atento de meus pais que não deixam nada passar e vão em buasca de soluções
by Emanuellle representada por sua mãe
Music, film
by Ida Sofie Brems-Larsen
My angel feels more happy and secure with mum and dad
by Ashraf
People treating me lie I'm smart.
by E. Wood
Family wellness improved Irene's
by Blanca
Prepara a mi niña estos años a través del cuidado diario
by Karin Colmán
Travel a lot
by Menchu
Assuming competency helps to work with comminication and education
by T_Rex
Riding my Freedom Concepts Adaptive Bike is fun!
by Madelyne
I thought i would have teach my daughter About the world. It turns out. I would teach de world about my daughter.
by Danielle
Tobii
by Sofie
Being on lo-dose birth control as a hormone levelling measure helped so hormone spikes don't happen and don't trigger seizures.
by Allie
Daily exercise and interaction with others improves my quality of life
by Dani
being stimulated in many ways (travels,music,tv, ipad games...)
by Alexandra
PT, OT, ST 4x per week each
by Beatriz
PT, OT, ST 4x per week each
by Beatriz
Rett clinic
by Skylar
Ter uma equipe multidisciplinar de médicos, de terapeutas e de educadores que buscam o trabalho em conjunto
by Emanuellle representada por sua mãe