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Which advice would you give to someone who has just been diagnosed with Rubinstein-Taybi Syndrome?

See some advice from people with experience in Rubinstein-Taybi Syndrome to people who have just been diagnosed with Rubinstein-Taybi Syndrome

Rubinstein-Taybi Syndrome advice
3 answers
RTS is a beautiful thing! You will learn so much from your loved one or self. Just because your physical features are different and your mind is not "typical" you will be able to look at life from a different angle.

Posted Mar 30, 2017 by Lspinelli 1000
Every person with rts is different the syndrome can range from mild to severe. Treat accordingly and take things one at a time. Those with RTS are usually very happy and easy to get along with. They are very sensitive and caring. Speech delay or being nonverbal can lead to frustration for the child or adult and sign language will be very helpful in the long run. Some with RTS have a very weak immune system and there bones are easily broken (Just bumping into a doorway had my son in a cast with 4 broken toes). Having a weak gait makes it a bit harder to walk ,my son has a side to side waddle but can walk fine on his own but with close supervision

Posted Mar 30, 2017 by Eyman 300
Translated from spanish Improve translation
You have the urge to do things and I always try to, with the support of their people nearby and don't be afraid never to make friends.

Posted Mar 30, 2017 by Álvaro Martos 1050

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Stories of Rubinstein-Taybi Syndrome

RUBINSTEIN-TAYBI SYNDROME STORIES
Rubinstein-Taybi Syndrome stories
My name is Raelyn Hollins. I am 2 years old. When I was born the doctors thought that I had a seizure, so I was sent to a bigger hospital to be monitored in the NICU. Many tests were performed on me. A geneticist came up with the diagnosis of Rubinst...
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I found out September of 2015 that my son has Rubenstein Taybi syndrome. He's 4 now, & I hope to connect with others. I love to know how families can help their kids with this condition. He's up to 3 words & 3 syllables. We haven't been able to be su...
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Savannah was born in 2003 our only daughter had finally arrived. We already had two very happy and healthy boys 9 and 3 years older than our daughter. Savannah  developped slowly was never a huge eater and was a few montlhs behind in her goals to wh...
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