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  2. Sanfilippo Syndrome
  3. Advice
My daughter Shelby had MPS IIIA
by Sheila George
Mis hijas me tienen viva
by Maggie
Keep active doing school, sports, and 4-H
by Michelle
Jesse was first child in USA to take genistein and still takes it 14 years later for SRT in Sanfilippo !
by Patty Jesse
Die wissenschaftliche Auseinadersetzung mit der Diagnose
by Jonas
She passed away 01-28-2015 ate age 20.
by Sheila George
A no guardar mis penas y males, soltar todo
by Maggie
Lots of coloring and reading picture books
by Michelle
Jesse takes more vitamins and supplement to support metabolism than he does drugs !
by Patty Jesse
Mein Studium zum Förder- und Inklusionspädagogen
by Jonas
Trabajar y tener proyectos
by Maggie
Watch cartoons-especially Dora, Blues Clues, Spongebob, and Barney!
by Michelle
Healthy eating and preventive maintanence of all symptoms before they escalate has kept me healthy overall, mom makes sure I get plenty of mental and physical stimulation to keep my mind and brain receiveing and doing things !
by Patty Jesse
Sein Lachen
by Jonas