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19

Is it easy to find a partner and/or maintain relationship when you have Sanfilippo Syndrome?

People with experience in Sanfilippo Syndrome give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Sanfilippo Syndrome. What are the possible difficulties in having a relationship?

Couple and Sanfilippo Syndrome
4 answers
A person with Sanfilippo Syndrome will not have a partner. It is a very neurological illness....the skills are not there to have those types of relationships.
Posted Nov 6, 2019 by TSF Inc Team Sanfilippo Foundation
It is a challenge but it can be done. Patience and understanding are key. This is a very difficult illness to live with.
Posted Jan 1, 2018 by Danielle 3160
Most Sanfilippo kids never partner nor marry . Usually cared for by parents or cre facility all their lives .
Posted Feb 25, 2019 by Patty Jesse 3000
Sanfilippo's cannot start a relationship or maintain one as the disease is degenerative and they will regress with this condition.
Posted Nov 3, 2019 by Anne-marie 2500

Couple and Sanfilippo Syndrome

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Stories of Sanfilippo Syndrome

SANFILIPPO SYNDROME STORIES
Sanfilippo Syndrome stories
DIAGNOSING EMILY. A JOURNEY WITH SANFILIPPO SYNDROME
Emily was born a perfectly healthy, 8lb 12oz full term baby girl. She progressed typically until around 3.5yrs old we thought her speech should be a bit more developed than it was. She had also developed what we assumed to be ADHD. Em's first special...
Sanfilippo Syndrome stories
ABBY WALLIS
Abby was thought to have PDD-NOS until October of 2017 when she was diagnosed with Sanfilippo Syndrome-type A. She is 22 years old.
Sanfilippo Syndrome stories
ANTHONY HUDSON
Was 14 years old in 2005 when he gained his wings MPS/sanfilippo/type A
Sanfilippo Syndrome stories
DIAGNOSIS
Reagan was diagnosed at age 3 with MPS III A. Reagan has some hearing loss and speech delay. Reagan is currently involved in a Gene Replacement Therapy Trial.
Sanfilippo Syndrome stories
HEATHER ASHLEY
My daughter was diagnosed with Sanfillippo Syndrome 3 a month after my son passed away at the the age of 26 days old. He was on life support and we has to disconnect life support due to him needing a heart and lung transplant and his organs were fail...

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