World map of Sanfilippo Syndrome View more
  2. Sanfilippo Syndrome
  3. Forum
  4. Top questions
  5. Question 13
13

Does Sanfilippo Syndrome have a cure?

Here you can see if Sanfilippo Syndrome has a cure or not yet. If there is no cure yet, is Sanfilippo Syndrome chronic? Will a cure soon be discovered?

Sanfilippo Syndrome cure
4 answers
While there are many possible treatments in trial, we have nothing right now even to treat, ,let alone cure. No, there is no cure for Sanfilippo Syndrome.
Posted Nov 6, 2019 by TSF Inc Team Sanfilippo Foundation
There is no cure for Sanfilippo Syndrome. Our community is working diligently with researchers, right now focusing on Gene Therapy, and Gene Therapy with Stem Cells. We are just in the beginning of clinical trials.
Posted Jan 1, 2018 by Danielle 3160
No cure for Sanfilippo at this time 2019
Posted Feb 25, 2019 by Patty Jesse 3000
Sadly at the present time there is no cure for Sanfilippo syndrome.
Posted Nov 3, 2019 by Anne-marie 2500

Sanfilippo Syndrome cure

Sanfilippo Syndrome life expectancy

What is the life expectancy of someone with Sanfilippo Syndrome?

6 answers
Celebrities with Sanfilippo Syndrome

Celebrities with Sanfilippo Syndrome

5 answers
Is Sanfilippo Syndrome hereditary?

Is Sanfilippo Syndrome hereditary?

6 answers
Is Sanfilippo Syndrome contagious?

Is Sanfilippo Syndrome contagious?

7 answers
ICD9 and ICD10 codes of Sanfilippo Syndrome

ICD10 code of Sanfilippo Syndrome and ICD9 code

5 answers
Natural treatment of Sanfilippo Syndrome

Is there any natural treatment for Sanfilippo Syndrome?

4 answers
Living with Sanfilippo Syndrome

Living with Sanfilippo Syndrome. How to live with Sanfilippo Syndrome?

4 answers
Sanfilippo Syndrome diet

Sanfilippo Syndrome diet. Is there a diet which improves the quality of lif...

5 answers

World map of Sanfilippo Syndrome

Find people with Sanfilippo Syndrome through the map. Connect with them and share experiences. Join the Sanfilippo Syndrome community.
View map

Stories of Sanfilippo Syndrome

SANFILIPPO SYNDROME STORIES
Sanfilippo Syndrome stories
DIAGNOSING EMILY. A JOURNEY WITH SANFILIPPO SYNDROME
Emily was born a perfectly healthy, 8lb 12oz full term baby girl. She progressed typically until around 3.5yrs old we thought her speech should be a bit more developed than it was. She had also developed what we assumed to be ADHD. Em's first special...
Sanfilippo Syndrome stories
ABBY WALLIS
Abby was thought to have PDD-NOS until October of 2017 when she was diagnosed with Sanfilippo Syndrome-type A. She is 22 years old.
Sanfilippo Syndrome stories
ANTHONY HUDSON
Was 14 years old in 2005 when he gained his wings MPS/sanfilippo/type A
Sanfilippo Syndrome stories
DIAGNOSIS
Reagan was diagnosed at age 3 with MPS III A. Reagan has some hearing loss and speech delay. Reagan is currently involved in a Gene Replacement Therapy Trial.
Sanfilippo Syndrome stories
HEATHER ASHLEY
My daughter was diagnosed with Sanfillippo Syndrome 3 a month after my son passed away at the the age of 26 days old. He was on life support and we has to disconnect life support due to him needing a heart and lung transplant and his organs were fail...

Tell your story and help others

Tell my story

Sanfilippo Syndrome forum

SANFILIPPO SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map