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Sanfilippo Syndrome diet. Is there a diet which improves the quality of life of people with Sanfilippo Syndrome?

Are you aware of a diet that can improve the quality of life of people with Sanfilippo Syndrome? Is there a diet that is suggested to avoid when having Sanfilippo Syndrome? See if there is a diet that can improve the quality of life of people with Sanfilippo Syndrome, recommended and to avoid food when having Sanfilippo Syndrome

Sanfilippo Syndrome diet
4 answers
There is no known absolute for Sanfilippo as far as diet is concerned. It is best to keep the diet as clean as possible, no additives and things like that. Some parents have removed dairy, gluten, etc in hopes of helping, but there is no research to prove any of these help. Dairy intolerance does seem to be a thing later in life for many children who once tolerated it.
There is no known diet to help with Sanfilippo Syndrome. Some families have found taking out common allergens helps with their children, but just like a typical child, this appears to be unique to the individual.

Posted Jan 1, 2018 by Danielle 3160
Similar to Keto, with low volume of simple
Carbs and the least additives and chemicals added are healthier overall

Posted Feb 25, 2019 by Patty Jesse 3000
Sadly no diet works.

Posted Nov 3, 2019 by Anne-marie 2500

Sanfilippo Syndrome diet

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Emily was born a perfectly healthy, 8lb 12oz full term baby girl. She progressed typically until around 3.5yrs old we thought her speech should be a bit more developed than it was. She had also developed what we assumed to be ADHD. Em's first special...
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Abby was thought to have PDD-NOS until October of 2017 when she was diagnosed with Sanfilippo Syndrome-type A. She is 22 years old.
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My daughter was diagnosed with Sanfillippo Syndrome 3 a month after my son passed away at the the age of 26 days old. He was on life support and we has to disconnect life support due to him needing a heart and lung transplant and his organs were fail...

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