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Is Sanfilippo Syndrome hereditary?

Here you can see if Sanfilippo Syndrome can be hereditary. Do you have any genetic components? Does any member of your family have Sanfilippo Syndrome or may be more predisposed to developing the condition?

Is Sanfilippo Syndrome hereditary?
4 answers
Yes, mom and dad both must be carriers
Posted Nov 6, 2019 by TSF Inc Team Sanfilippo Foundation
Yes. Sanfilippo Syndrome is passed down by both mom and dad. If a child only gets a gene from one parent, they do not have Sanfilippo but they are a carrier.
Posted Jan 1, 2018 by Danielle 3160
Yes to some degree . You would still need to partner with someone who also has the recessive gene
Posted Feb 25, 2019 by Patty Jesse 3000
Yes it can go down the Genetic line.
Posted Nov 3, 2019 by Anne-marie 2500

Is Sanfilippo Syndrome hereditary?

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World map of Sanfilippo Syndrome

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Stories of Sanfilippo Syndrome

SANFILIPPO SYNDROME STORIES
Sanfilippo Syndrome stories
DIAGNOSING EMILY. A JOURNEY WITH SANFILIPPO SYNDROME
Emily was born a perfectly healthy, 8lb 12oz full term baby girl. She progressed typically until around 3.5yrs old we thought her speech should be a bit more developed than it was. She had also developed what we assumed to be ADHD. Em's first special...
Sanfilippo Syndrome stories
ABBY WALLIS
Abby was thought to have PDD-NOS until October of 2017 when she was diagnosed with Sanfilippo Syndrome-type A. She is 22 years old.
Sanfilippo Syndrome stories
ANTHONY HUDSON
Was 14 years old in 2005 when he gained his wings MPS/sanfilippo/type A
Sanfilippo Syndrome stories
DIAGNOSIS
Reagan was diagnosed at age 3 with MPS III A. Reagan has some hearing loss and speech delay. Reagan is currently involved in a Gene Replacement Therapy Trial.
Sanfilippo Syndrome stories
HEATHER ASHLEY
My daughter was diagnosed with Sanfillippo Syndrome 3 a month after my son passed away at the the age of 26 days old. He was on life support and we has to disconnect life support due to him needing a heart and lung transplant and his organs were fail...

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