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Is there any natural treatment for Sanfilippo Syndrome?

Are there natural treatment(s) that may improve the quality of life of people with Sanfilippo Syndrome? Here you can see if there is any natural remedy and/or treatment that can help people with Sanfilippo Syndrome

Natural treatment of Sanfilippo Syndrome
3 answers
There are no set treatments for Sanfilippo Syndrome yet but we are working on that. You can however, treat many of the main symptoms of the illness, many by keeping up on vitamin/mineral levels and supplementing accordingly. Sanfilippo is a metabolic disorder so our children do not typically metabolize foods or medication like a typical person would.
Posted Jan 1, 2018 by Danielle 3160
Only substrate reduction therapies of genistein and mixed opinions on Zavesca . In our experience both help ! A clean diet helps with better health overall ! Diets high in healthy fats protect the brain
Posted Feb 25, 2019 by Patty Jesse 3000
There is no known natural treatment.
Posted Nov 3, 2019 by Anne-marie 2500

Natural treatment of Sanfilippo Syndrome

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Stories of Sanfilippo Syndrome

SANFILIPPO SYNDROME STORIES
Sanfilippo Syndrome stories
DIAGNOSING EMILY. A JOURNEY WITH SANFILIPPO SYNDROME
Emily was born a perfectly healthy, 8lb 12oz full term baby girl. She progressed typically until around 3.5yrs old we thought her speech should be a bit more developed than it was. She had also developed what we assumed to be ADHD. Em's first special...
Sanfilippo Syndrome stories
ABBY WALLIS
Abby was thought to have PDD-NOS until October of 2017 when she was diagnosed with Sanfilippo Syndrome-type A. She is 22 years old.
Sanfilippo Syndrome stories
ANTHONY HUDSON
Was 14 years old in 2005 when he gained his wings MPS/sanfilippo/type A
Sanfilippo Syndrome stories
DIAGNOSIS
Reagan was diagnosed at age 3 with MPS III A. Reagan has some hearing loss and speech delay. Reagan is currently involved in a Gene Replacement Therapy Trial.
Sanfilippo Syndrome stories
HEATHER ASHLEY
My daughter was diagnosed with Sanfillippo Syndrome 3 a month after my son passed away at the the age of 26 days old. He was on life support and we has to disconnect life support due to him needing a heart and lung transplant and his organs were fail...

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