What is the prognosis if you have Scleroderma? Quality of life, limitations and expectatios of someone with Scleroderma.

▷ Scleroderma prognosis

Stories of Scleroderma

SCLERODERMA STORIES

VIEWS

BY

In 1996 I was diagnosed with Systemic Diffuse Scleroderma. I had never heard of it, couldn't spell or pronounce it. Fast forward 20 years and I can say that Scleroderma has been a blessing in my life, not a curse. In 1996 I almost immediately was ho...

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by Helene

SCLERODERMA DIAGNOSIS

I was officaily diagnosed in 2013 at age 52. My dermatoligist ran blood tests becaause I was complaining of the apperance of several red spots (telangiectasias) and Raynauds symptoms. She came back with the news that I have CREST syndrome, a conne...

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by Laurie

INTRO

Hello, my name is Claire. I was diagnosed with extensive Localized Cutaneous Scleroderma in December of 2012 at the age of 4.5 years.

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by Claire

I THOUGHT I WAS CRAZY

It took me several years before I got diagnosed. I even had one doctor tell me that it was all in my head. For years I always had an excuse for why feeling the way that I was, stress or taking on to much. Then finally I saw the correct doctor and g...

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6/22/16, 9:13 AM by Deb

ECDS

I was dianosed in the late 1950s with En Coup De Sabre Localized Scleroderma when I was around 5-7 years old.

Scleroderma prognosis