1

Which are the symptoms of Scleroderma?

See the worst symptoms of affected by Scleroderma here

Scleroderma symptoms
Translated from spanish Improve translation
The symptoms of scleroderma vary greatly from one patient to another. From the start can affect different organs and the progression to be very different between patients and others. The worst symptoms experienced by people with scleroderma can be: - Fatigue or lack of energy - aches and Pains with inflammation or without inflammation - Hardening of the skin - Raynaud's Phenomenon - pulmonary Fibrosis - pulmonary Hypertension - gastroesophageal Reflux disease - Tachycardia - Arrhythmias - cardiac blockage - myocardial Fibrosis - Effusions pericardial - high blood pressure - kidney Problems - recurrent Infections - psychiatric Symptoms
Diseasemaps
19 answers
Reflux that is not heartburn but on a scale that is so painful. This is due to the disease destroying the motility of your esophagus. My reflux was so severe and damaging that I had experimental gastric bypass surgery to stop it. I was not overweight at all and this was a method suggested by doctors out of the United States. By having my stomach be the size of a plum gastric juices can't reflux.

Pulmonary Fibrosis where your lungs are affected. The medication Cellcept has been so effective for me.

I have horrific pain 24/7 and horrible fatigue. My pain is everywhere but the worst being in the legs. It's as though I am being stabbed every single centimeter from the inside - out. So I am not able to sleep much at night due to the pain.

I could go on and on with other issues.....

Posted Mar 21, 2017 by Peggy L 550
Joint pain and stiffness would be the first thing I would get rid of. For others with greater skin involvement, skin thightening would be the first.

Posted Mar 22, 2017 by Paige 100
Scleroderma is a very personal disease, meaning each person has very different issue than the next. So there really isn't one main symptom that is the worst in general. For myself the worst symptoms would have to be my skin and how tight it has become. It causes me to get horrible ulcerated sores on my hand and feet. And my lung function which has been steadily getting worse. I have pulmonary fibrosis and it's becoming harder and harder for me to breath on my own.

Posted Mar 31, 2017 by Amy 2600
The worst symptoms of Scleroderma would be tightening of the skin and getting rhaynud

Posted Apr 1, 2017 by Fashah 1150
Stifness of the body
pain in your hands
tired all the time

Posted Apr 1, 2017 by Milda 1000
It varies depending on the disease variant. For patients with more severe diffuse forms of scleroderma, it can be severe pain and fatigue, physical deformity (typically hands then face). Digital ulcers can be very painful and slow healing, potentially leading to gangrene and auto-amputations. Lung problems are common in this disease and are currently the leading cause of death. While the disease gets its name from hardening of the skin, in the limited variants of the disease, this symptom is often delayed for many years. In the diffuse variants, skin changes are usually very common in early years.

Posted Apr 3, 2017 by Choclit 1150
For me the worst symptoms are the extreme fatigue, insomnia, AND rheumatoid arthritis. Also, the mental challenges of NOT working!

Posted Sep 29, 2017 by Teresa 100
I have CREST ! Raynauds stomach issues and joint pain!

Posted Jun 16, 2018 by Michelle Weatherford 100
Scleroderma means 'tight skin" in Latin and has many variable symptoms. I am affected by Scleroderma with features of CREST: Calcinosis, Reflux, Esophagial issues, Sclerodactly, and Tangectacius. These symptoms seem to move around and some do not affect me at all. However, wintertime is particularly difficult with Raynaud's which turns my fingers red, white, and more often, blue. This means poor circulation and blood is not going to those areas.

Posted Nov 21, 2018 by Juanita 1900
Translated from spanish Improve translation
Without hesitation raynaud's syndrome result in ulcers and wounds inability to use the hands.

Posted Feb 24, 2017 by 1000
Translated from spanish Improve translation
hypertension and pulmonary fibrosis, barett barret, renal failure chronic, deformity of hands and feet due to the hardening of the latter, arthralgia, diffuse, association with Sd. Sjogren's and Raynaud's

Posted Feb 27, 2017 by cecilia miranda 1000
Translated from spanish Improve translation
Pain, especially in the legs, hands, beds become swollen and with sores, lack of circulation in the fingers, tiredness, breathing problems with exercise.

Posted Mar 21, 2017 by Amparo 1000
Translated from spanish Improve translation
Widespread pain, heartburn, dizziness, nausea, blurred vision, limitations in the arms and legs, difficulty walking for a long time, I can not wear any footwear and especially deterioration of the denture

Posted Mar 23, 2017 by ana h 1400
Translated from spanish Improve translation
Hardening of the skin. Lack of mobility of certain body parts, especially hands. Change in skin coloration (darkened or in some cases white spots). Severe loss of weight. Difficulty eating certain foods, especially hard. Reflux and nausea. Diarrhea and extreñimiento.

Posted Apr 28, 2017 by Alma Olivia 1000
Translated from spanish Improve translation
Spots on the skin, which is placed as hard as a piece of cardboard, first the stain is white until you get to an ivory color.they have little tolerance to the cold

Posted May 11, 2017 by Tatiana 1135
Translated from spanish Improve translation
Fatigue, deficiencies in iron, known as anemia, syndrome of Reynaud, pain of joints, sausage fingers, numbness in the hands and severe pain by the failure in the flow of blood to the hands and fingers, similar to a burning pain

Posted May 15, 2017 by Lucero 1050
Translated from spanish Improve translation
Is usually associated to the Raynaud's phenomenon that hampers the movement of hands and feet usually when you are exposed to cold or stress. It can also affect internal organs, primarily the esophagus and therefore will have difficulty swallowing and reflux, lungs and can cause pulmonary fibrosis or pulmonary hypertension, this may also affect heart and kidneys. The liver can be affected but often times it is due to the medication.
The skin loses flexibility and usually although it depends on the type of scleroderma tends to affect the face and hands to a greater extent.
Problems in the mobility of the joints, ulcers in the fingers of the hands, ankles, and elbows mainly.
The symptom that I would remove if I could it would be the internal organs as lungs and esophagus in my case.

Posted May 15, 2017 by Montse 1151
Translated from portuguese Improve translation
Pain in every joint in the body.
Digital ulcers.
Difficulties in swallowing.
Thickening of the skin, including opening of the mouth.
Pulmonary fibrosis

Posted Sep 30, 2017 by Carol 1000

Scleroderma symptoms

Scleroderma life expectancy

What is the life expectancy of someone with Scleroderma?

16 answers
Celebrities with Scleroderma

Celebrities with Scleroderma

2 answers
Is Scleroderma hereditary?

Is Scleroderma hereditary?

5 answers
Is Scleroderma contagious?

Is Scleroderma contagious?

5 answers
ICD9 and ICD10 codes of Scleroderma

ICD10 code of Scleroderma and ICD9 code

3 answers
Natural treatment of Scleroderma

Is there any natural treatment for Scleroderma?

3 answers
Living with Scleroderma

Living with Scleroderma. How to live with Scleroderma?

14 answers
Scleroderma diet

Scleroderma diet. Is there a diet which improves the quality of life of peo...

14 answers

World map of Scleroderma

Find people with Scleroderma through the map. Connect with them and share experiences. Join the Scleroderma community.

Stories of Scleroderma

SCLERODERMA STORIES
Scleroderma stories
In 1996 I was diagnosed with Systemic Diffuse Scleroderma. I had never heard of it, couldn't spell or pronounce it. Fast forward 20 years and I can say that Scleroderma has been a blessing in my life, not a curse. In 1996 I almost immediately was ho...
Scleroderma stories
I was officaily diagnosed in 2013 at age 52. My dermatoligist ran blood tests becaause I was complaining of the apperance of several red spots (telangiectasias) and Raynauds symptoms. She came back with the news that I have CREST syndrome, a conne...
Scleroderma stories
Hello, my name is Claire. I was diagnosed with extensive Localized Cutaneous Scleroderma in December of 2012 at the age of 4.5 years.    
Scleroderma stories
It took me several years before I got  diagnosed. I even had one doctor tell me that it was all in my head. For years I always had an excuse for why feeling the way that I was, stress or taking on to much. Then finally I saw the correct doctor and g...
Scleroderma stories
I was dianosed in the late 1950s with En Coup De Sabre Localized Scleroderma when I was around 5-7 years old.

Tell your story and help others

Tell my story

Scleroderma forum

SCLERODERMA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map