World map of Short Bowel Syndrome View more
  2. Short Bowel Syndrome
  3. Forum
  4. Top questions
  5. Question 7
7

Living with Short Bowel Syndrome. How to live with Short Bowel Syndrome?

Can you be happy living with Short Bowel Syndrome? What do you have to do to be happy with Short Bowel Syndrome? Living with Short Bowel Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Short Bowel Syndrome

Living with Short Bowel Syndrome
4 answers
*it's quite a challenge
*nothing can be planned ahead
* depends on your body
*good days put on your smile and reddest lipstick on your off days - stay in your save place. Home, bed, where ever you can be as calm & relaxed as be
*your hubby/partner & family must be involved for support and understanding
Posted Feb 28, 2017 by Riana Rautenbach 1500
Be focus and don’t loose hope, keep moving and consult experiance medical team who has knowledge with SBS.

Keep in mind that each person may have his/her own difficulties even if they share the same case.
Posted Nov 6, 2018 by ZF 4600
I can live normally. At night I have TPN (total parenteral nutrition), but I can eat like normal people. At day I am TPN free and I can do all I want. It's not ok to go to public pool because of all bacteria that can cause sepsis, but sea is ok. You are not so different from everyone else, so you just live normally. If something don't work for you, don't do it :)
Posted Jan 28, 2019 by Tina 100
Translated from spanish Improve translation
Accept it, continue the medical care, follow the diet defined. Enjoy every moment of life, enjoy every food is tolerated and which nourishes the body. Surround yourself with a loving family, and that is solidarity through the diet
Posted Nov 8, 2017 by Liz 2000

Living with Short Bowel Syndrome

Short Bowel Syndrome life expectancy

What is the life expectancy of someone with Short Bowel Syndrome?

5 answers
Celebrities with Short Bowel Syndrome

Celebrities with Short Bowel Syndrome

2 answers
Is Short Bowel Syndrome hereditary?

Is Short Bowel Syndrome hereditary?

5 answers
Is Short Bowel Syndrome contagious?

Is Short Bowel Syndrome contagious?

5 answers
ICD9 and ICD10 codes of Short Bowel Syndrome

ICD10 code of Short Bowel Syndrome and ICD9 code

4 answers
Natural treatment of Short Bowel Syndrome

Is there any natural treatment for Short Bowel Syndrome?

3 answers
Short Bowel Syndrome diet

Short Bowel Syndrome diet. Is there a diet which improves the quality of li...

4 answers
History of Short Bowel Syndrome

What is the history of Short Bowel Syndrome?

3 answers

World map of Short Bowel Syndrome

Find people with Short Bowel Syndrome through the map. Connect with them and share experiences. Join the Short Bowel Syndrome community.
View map

Stories of Short Bowel Syndrome

SHORT BOWEL SYNDROME STORIES
Short Bowel Syndrome stories
ANDREW "ANDY" JABLONSKI-30 YR. OLD SHORT BOWEL PATIENT AND EXPERT
Living with my condition http://shortbowelfoundation.org/about-short-bowel-syndrome/ (SBS) has affected my life in many different ways over the years — physically, emotionally and socially. They all have their positives and their negatives. These ...
Short Bowel Syndrome stories
SCREWED UP SURGERY
13 years ago I had a 3 cm tumor (?) n my surgeon was convinced that I had Carinoid cancer. Of course  hearing those words and having had breast cancer 7 years previously I was not in a position to look into my situation n get second opinion like I s...
Short Bowel Syndrome stories
LISA CASTRO'S STORY
Last year April 28th 2016 I was rushed to the emergency room, I was in severe pain it was a pain I never felt before, I was told I had a blockage in my small intestine and they had to do emergency surgery. Resulting in small gut. It was and still is ...
Short Bowel Syndrome stories
YOU NAME THE COMPLICATION
March 2012 I went into the hospital for a vertical band takedown and esophogealjujonectomy to correct a Bowel blockage right below the banding. This was a "routine procedure" that this surgeon "performed on a daily basis." Or so he said. Within days ...
Short Bowel Syndrome stories
SHORT BOWEL SYNDROME
In April 2016 whilst 11 weeks pregnant I had a minor slip in the kitchen no injury but over the next few days I began to get niggly upper abdominal pain and was becoming short tempered and sleepy. Nothing much unusual there though I was working 12 ho...

Tell your story and help others

Tell my story

Short Bowel Syndrome forum

SHORT BOWEL SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map