Celebrities with Shwachman Diamond Syndrome

Shwachman Diamond Syndrome (SDS) is a rare genetic disorder that affects various organs and systems in the body. It is characterized by bone marrow dysfunction, pancreatic insufficiency, and skeletal abnormalities. While SDS is a relatively unknown condition, there are a few celebrities who have been open about their diagnosis and have helped raise awareness about the syndrome.

1. Anthony Rizzo

Anthony Rizzo, a professional baseball player for the Chicago Cubs, has been vocal about his battle with SDS. He was diagnosed with the syndrome at a young age and underwent treatment, including a bone marrow transplant. Rizzo has used his platform as a professional athlete to raise awareness and funds for SDS research.

2. Luke Evslin

Luke Evslin, a former contestant on the reality TV show "Survivor," has also been diagnosed with Shwachman Diamond Syndrome. He has shared his journey with the syndrome on social media and has used his platform to educate others about the condition. Evslin has become an advocate for SDS research and has participated in various fundraising events.

3. Ethan Zohn

Ethan Zohn, a former professional soccer player and winner of the reality TV show "Survivor," has been living with SDS since childhood. He has been open about his struggles with the syndrome, including undergoing a bone marrow transplant. Zohn has used his celebrity status to raise awareness and funds for SDS research through his involvement with various charitable organizations.

4. Sarah Hyland

Sarah Hyland, an actress best known for her role in the TV show "Modern Family," has publicly discussed her battle with SDS. Hyland underwent a kidney transplant in 2012 due to complications from the syndrome. She has been an advocate for organ donation and has used her platform to raise awareness about SDS and other health issues.

5. Michael Cuccione

Michael Cuccione, a Canadian actor and singer, was diagnosed with SDS at a young age. Despite his health challenges, Cuccione pursued a career in the entertainment industry and became known for his role in the TV show "2gether." He used his celebrity status to raise awareness about SDS and founded the Michael Cuccione Foundation to support research and treatment for the syndrome.

These celebrities have played a significant role in raising awareness about Shwachman Diamond Syndrome. Their openness about their diagnosis and their efforts to support research and treatment have helped shed light on this rare genetic disorder. Through their advocacy, they have inspired others affected by SDS and have contributed to the advancement of medical knowledge and support for those living with the syndrome.