Which advice would you give to someone who has just been diagnosed with Small Fiber Neuropathy?

Read - Bing/Google - Repete - There is always constantly updated info for SFN being researched and published.

You are not alone, you will feel better, you will have your life back.

Yes, it will take time, and the time spend will help others that have also been through it. There are many boards, forms, and even look into community resources to hear from others, and possible help others.

SFN is not the disease. Don’t stop looking for the cause. There is ongoing research and new information on the horizon. If your physician is not aware of this, seek a physician that is. You have a real and difficult illness. People will doubt you and you will doubt yourself... Find a mental health professional and/or support group that can help remind you that this is real and difficult.

DOCUMENT ALL CURRENT AND PAST MDS, VISITS, YEARS IF NOT MORE. WHO YOU SAW AND WHY AND ALL THE CORRECT AND INCORRECT DIAGNOSES YOU RECEIVED SINCE YOU CAN REMEMBER SEEING MDS.

CREATE A CHRONOLOGICAL CHART OF ALL YOUR MEDICAL VISITS, VACCINATIONS, SURGERIES, TREATMENTS, ****MEDICINE TRIALS**** FAILED OR THAT WORKED. YOU DON'T WANT TO TAKE THE SAME AWFUL MEDICATIONS THAT GAVE YOU HORRIBLE SIDE EFFECTS OR DID NOT WORK AFTER LENGTHY TRIALS.

ONCE THIS IS COMPLETE, YOU ONLY NEED TO ADD TO IT DAILY/WEEKLY/MONTHLY AS THERE IS NEW INFORMATION. ASK YOUR FAMILY FOR AS MUCH INFO ABOUT SEVERE ILLNESSES OR CHRONIC ILLNESSES THAT YOUR SIBLINGS, PARENTS, GRANDPARENTS AND GREAT GRANDPARENTS HAD.

You will be expected to know this information and also you are way more likely to get what your lineage had, before you than the average person so you can be better prepared.