Weak Type I . . . years later
Stella was diagnosed at just one month of age--she became floppy almost overnight. We were told weeks or months because she was the weakest Mayo said they had seen to date but as of 2016, she's almost 9 years old. I only tell you this to give you some HOPE if you are a newly diagnosed family. Don't let the doom and gloom overtake you if you want to give your child a life. It's a rollercoaster but the blessing is worth it!
Find people with Spinal Muscular Atrophy through the map. Connect with them and share experiences. Join the Spinal Muscular Atrophy community.