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Spinal Muscular Atrophy
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Spinal Muscular Atrophy
Advice of Spinal Muscular Atrophy
Os meus pais estão sempre comigo
by Diogo castro
Salbutamol helps with strengths and fatique
by Melvil Vedrenne-cloquet
Get plenty of rest
by Christy Simpson
Drink fresh goat milk, it makes different!
by Ali Haqeem
Staying on my belly helps me to breathe easier.
by Grady Landrum
Getting a mickey button helped me have more energy
Spinalna misicna tip1
Salbutamol has helped to maintain strength
by Andy czerwinski
The support of my family and friends.
NIV / use of bipap
Being proactive with care is essential for best outcomes! Get the gtube/bipap/cough assist as early as it seems it's needed!
Received excellent medical care as mom was a RN
I had an extraordinary mother and wonderful siblings
Registered charity in memory of our daughter The Annabelle Rose Foundation
by Annabelle Rose Burfitt
Alina's mother Olga Germanenko joins the map. Alina is SMA1 and 7 years, has tracheoscomy and ventilation support
Was told I'd be in a wheelchair by the time I was 12. I'm still walking!
My parents always letting me believe I can do anything
Faith- God is great
by Tyler Hucks
by Jordan Hucks
by Lia Renee Cobos
Technology & equipment
by Heikki Tiri
Paleo diet, initially gluten restrictive eating helped with losing/maintaining weight and having more energy/better endurance throughout the day
Accepting yourself is very important
by Gina Geary
a electric wheelchair to compensate the muscels of legs, and a breathing machine to compensate the breathing musculaur
by Claudia und Ilona Brandt
At age ten, my spine was fused with Harrington rods to prevent further scoliosis.
I am married with a 2 year old toddler which keeps me active
by Sasha Kirkland
Meditation makes me calmer and less stressed.
Chloe has been on Sodium Valporate (Epilum) since 18 months old. This has restored many functions and provided some strength.
I use cannabis for pain by eating it.
by Crystal Rondeau
Музыка всегда и везде делает мое настроение лучше
My daughter has a sma type1, start of the disease in 5.5 months. She is 17 months. I can help.
by Kasianenko Evgeniia
Treatment of Stem cells changed of my life
Amino Acid Diet
by Bradley Family (Cynan&Baby Lugus)
Мама Артёма Татьяна. Очень люблю красивую природу и животных
by Евгений Шаповаленко
Ukrainian Registry of SMA patients http://csma.org.ua:8080/
by Children with SMA, Foundation
Connected with other palliative / comfort care families
Community Community COMMUNITY!! Get connected and involved with other families and individuals with the same condition!
I do feel better because of my family and my friends!