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Spinal Muscular Atrophy
Advice
Advice of Spinal Muscular Atrophy
Os meus pais estão sempre comigo
by Diogo castro
Salbutamol helps with strengths and fatique
by Melvil Vedrenne-cloquet
Get plenty of rest
by Christy Simpson
Drink fresh goat milk, it makes different!
by Ali Haqeem
Staying on my belly helps me to breathe easier.
by Grady Landrum
Getting a mickey button helped me have more energy
by Kristen
Spinalna misicna tip1
by Gabrijel
My Computer
by Thanos
Salbutamol has helped to maintain strength
by Andy czerwinski
The support of my family and friends.
by Dawn
NIV / use of bipap
by Fiorello
Being proactive with care is essential for best outcomes! Get the gtube/bipap/cough assist as early as it seems it's needed!
by Stella
Received excellent medical care as mom was a RN
by Ellyn
Phisiotherapy
by Mila
Phisiotherapy
by Mila
I had an extraordinary mother and wonderful siblings
by Julio
Registered charity in memory of our daughter The Annabelle Rose Foundation
by Annabelle Rose Burfitt
Alina's mother Olga Germanenko joins the map. Alina is SMA1 and 7 years, has tracheoscomy and ventilation support
by Alina
Was told I'd be in a wheelchair by the time I was 12. I'm still walking!
by Shonna
My parents always letting me believe I can do anything
by Ásthildur
Faith- God is great
by Iman
Love
by Tyler Hucks
Family
by Jordan Hucks
Vivonex diet
by Lia Renee Cobos
Technology & equipment
by Caelen
work
by Heikki Tiri
Paleo diet, initially gluten restrictive eating helped with losing/maintaining weight and having more energy/better endurance throughout the day
by Kristen
Accepting yourself is very important
by Patrycja
Technology
by Gina Geary
a electric wheelchair to compensate the muscels of legs, and a breathing machine to compensate the breathing musculaur
by Claudia und Ilona Brandt
At age ten, my spine was fused with Harrington rods to prevent further scoliosis.
by Emily
I am married with a 2 year old toddler which keeps me active
by Sasha Kirkland
Meditation makes me calmer and less stressed.
by Vitor
Chloe has been on Sodium Valporate (Epilum) since 18 months old. This has restored many functions and provided some strength.
by Chloe
Determination
by Glee
I use cannabis for pain by eating it.
by Crystal Rondeau
Музыка всегда и везде делает мое настроение лучше
by Надежда
Medical Marijuana
by Carl
VNI
by Hajar
My daughter has a sma type1, start of the disease in 5.5 months. She is 17 months. I can help.
by Kasianenko Evgeniia
Treatment of Stem cells changed of my life
by Monika
Amino Acid Diet
by Bradley Family (Cynan&Baby Lugus)
Мама Артёма Татьяна. Очень люблю красивую природу и животных
by Артём
Sex
by Евгений Шаповаленко
Ukrainian Registry of SMA patients http://csma.org.ua:8080/
by Children with SMA, Foundation
Physiotherapy
by Arthur
Connected with other palliative / comfort care families
by Michael
Community Community COMMUNITY!! Get connected and involved with other families and individuals with the same condition!
by Pradeep
I do feel better because of my family and my friends!
by Robert
God
by rachel
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