Networking, and attending the occasional SMA conference and the Abilities Expo, helps with emotional and mental support, as well as individual insight and development
Daily physio is a must. Every day Chloe's airways are cleared through percussion pats on her back for 3-5 minutes, followed by a session on the cough assist machine. Regular visits to the Hydro Therapy pool also very helpful.
TRY. Don't get coddled, babied, and convinced you're some delicate flower. Even if others are sure you can't, defy them and try. Keep trying. Never stop trying. Mentally, physically, emotionally, psychologically.