Stories of Spinal Muscular Atrophy

Spinal Muscular Atrophy stories
My son Grady was born on May 15th 2015. He wasn't due until June 19th but since I had polyhydraminos my water broke on May 13th. I had noticed while I was pregnant that Grady didn't move near as often or as much as my daughter did during my first pre...
Spinal Muscular Atrophy stories
My daughter has a SMA type1 , the start of the disease in 5.5 months. She is 17 months. She is breathing on her own. Little holding her head. Raises handle. She begins to talk.
Spinal Muscular Atrophy stories
I was born on March 5, 1949, in a poor neighborhood of Lima, Peru, in a time where most houses had no electricity and radio music was a luxury only afforded by the few. The television had not yet come to the country and Internet was unimaginable....
Spinal Muscular Atrophy stories 
Spinal Muscular Atrophy stories
Nie mam pełnych i ostatecznych wyników badań genetycznych. Na podstawie opisu podejrzewam, że to LGMD. Objawy choroby były widoczne w wieku 7 lat. Chodzenie na palcach, problemy z podnoszeniem się z podłogi. Przerost łydek. Przestałam ...

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Statistics of Spinal Muscular Atrophy

9 people with Spinal Muscular Atrophy have taken the SF36 survey. Mean of Spinal Muscular Atrophy is 1317 points (37 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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