I have been taking medical marijuana since September 2016.
doing normal things with my husband
Cough Assist
Swimming is one of my favorite exercises and has helped me stay physically strong for a long time
I was able to have a successful pregnancy... My daughter is now 20!
Never give up
Even if things are very hard and exhausting to do, push yourself beyond that "comfort zone". Mentally, physically, emotionally, psychologically.
Gabapentin - I can't move my hands or pee without it, but with it it's not a problem
My daughter Margarita has SMA 2, the start of the disease was when she was at the age of 8-9 months. Now she is 11 months.
It is important to have a positive mind, always optimistic.
Getting the correct diagnosis
AMBU should be anytime with you
vibrating bed, positioning bed, Tv and entertaining device nearby
Drogs.for my diagnose
Use the social worker the hospital provides. They can help with paperwork and funding
We took my granddaughter to see Dr John Bach one of a very few doctors considered to be SMA specialist he is in NJ
I am a married woman.
my mother always took care of me as she knew best
Если бы в нашем городе открылся цент по консультации и лечению сма для детей и подростков
Море
Надежда на будущее, благодаря знаниям из Библии
A fisioterapia ajuda a não atrofiar os músculos
Swimming helping keeping muscle strong
Use safety measures; cane, house aids
My mother and father love me very much.
I never give up hope that I will have an amazingly fulfilling life
Borac najveci na svijetu
My Nurse
Standing is essential
Walking for as long as I could. I still furniture cruise in the house but I have to use a chair outside of the house.
Cough assist
Diet and Respiratory care are equally important to your child's health quality of life!
Earned two Masters degrees
My family who never let me feel as I was useless or hopeless
My family who never let me feel as I was useless or hopeless
working for the Ann Sullivan Center
www.arf4sma.co.uk
We running Russian SMA Family Foundation to help russian children with SMA to fight. Here is the contact f-sma.ru
Returning to school to add a JD to my other 3 degrees (MFT, Construction Mngt, Media Production)
Love - love my nana
Love of her family
Family & friends
Swimming and guided Aqua exercise/physical therapy helps tremendously with maintaining muscle function and body tone
Cipro is best antibiotic for SMA patients
Money with which to pay for 24/7 PA assistance
my clon = twinsister
The nighttime Bi-Pap ventilation support I started using at age 37.