Help us to help more people
| View more
View more
Toggle navigation
Spinal Muscular Atrophy
Home
Map
Forum
Stats
Stories
Top questions
Advice
Diseasemaps
Close
Join the map
Do the survey
Login
en
English
Español
Italiano
Português
Deutsch
Čeština
Polski
Français
العربية
中文
Pусский
日本語
한국어
हिन्दी
Bahasa Melayu
Svenska
Spinal Muscular Atrophy
Advice
Advice of Spinal Muscular Atrophy
I have been taking medical marijuana since September 2016.
by Therese
doing normal things with my husband
by Cherie
Cough Assist
by Marni
Swimming is one of my favorite exercises and has helped me stay physically strong for a long time
by Brittany
I was able to have a successful pregnancy... My daughter is now 20!
by Lori
Never give up
by Dionne
Even if things are very hard and exhausting to do, push yourself beyond that "comfort zone". Mentally, physically, emotionally, psychologically.
by Jeremy
Gabapentin - I can't move my hands or pee without it, but with it it's not a problem
by Petra
My daughter Margarita has SMA 2, the start of the disease was when she was at the age of 8-9 months. Now she is 11 months.
by Datskevich Olga
It is important to have a positive mind, always optimistic.
by Silvia
Getting the correct diagnosis
by irh - mom of 15 year old with sma 3
AMBU should be anytime with you
by Ksenia
vibrating bed, positioning bed, Tv and entertaining device nearby
by Verónica Brotons
Drogs.for my diagnose
by Arturs
Use the social worker the hospital provides. They can help with paperwork and funding
by Jennie
We took my granddaughter to see Dr John Bach one of a very few doctors considered to be SMA specialist he is in NJ
by Tbear020762
I am a married woman.
by Elena Gabriela
my mother always took care of me as she knew best
by Virginia
Если бы в нашем городе открылся цент по консультации и лечению сма для детей и подростков
by Светлана
Море
by Alexandra
Надежда на будущее, благодаря знаниям из Библии
by Мария
A fisioterapia ajuda a não atrofiar os músculos
by Diogo castro
Swimming helping keeping muscle strong
by Melvil Vedrenne-cloquet
Use safety measures; cane, house aids
by Christy Simpson
My mother and father love me very much.
by Grady Landrum
I never give up hope that I will have an amazingly fulfilling life
by Kristen
Borac najveci na svijetu
by Gabrijel
My Nurse
by Thanos
Standing is essential
by Andy czerwinski
Walking for as long as I could. I still furniture cruise in the house but I have to use a chair outside of the house.
by Dawn
Cough assist
by Fiorello
Diet and Respiratory care are equally important to your child's health quality of life!
by Stella
Earned two Masters degrees
by Ellyn
My family who never let me feel as I was useless or hopeless
by Mila
My family who never let me feel as I was useless or hopeless
by Mila
working for the Ann Sullivan Center
by Julio
www.arf4sma.co.uk
by Annabelle Rose Burfitt
We running Russian SMA Family Foundation to help russian children with SMA to fight. Here is the contact f-sma.ru
by Alina
Returning to school to add a JD to my other 3 degrees (MFT, Construction Mngt, Media Production)
by Shonna
Love - love my nana
by Iman
Life
by Tyler Hucks
Love
by Jordan Hucks
Love of her family
by Lia Renee Cobos
Family & friends
by Caelen
work
by Heikki Tiri
Swimming and guided Aqua exercise/physical therapy helps tremendously with maintaining muscle function and body tone
by Kristen
Cipro is best antibiotic for SMA patients
by Patrycja
Money with which to pay for 24/7 PA assistance
by Gina Geary
my clon = twinsister
by Claudia und Ilona Brandt
The nighttime Bi-Pap ventilation support I started using at age 37.
by Emily
« Previous
1
2
3
4
Next »