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Stevens Johnson Syndrome stories


KHALIAH'S STORY


I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...

Views: 774 Jan 1, 2016, 1:50 PM by Khaliah

MY ADVERSE DRUG REACTION


I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...

Views: 718 by Lorna Perry

SJS TENS


I was in a construction accident and blew my knees out where they were bone on bone I received 3 injections of Euefleux shots and after the second shot I broke out with blisters and hives nobody knew what they were I was treated for three and a half ...

Views: 690 Nov 21, 2015, 4:57 PM by John

CALLUM'S STORY


Callum had SJS twice in 2013 at the age of 7. We still have no definite trigger 

Views: 478 Jul 10, 2016, 8:18 AM by Callum

MY GRANDDAUGHTER'S STORY


My granddaughter had TEN a year ago. She had a rash that was diagnosed as Scarlett fever. After 24hours she wasd admitted to our local emergency ward. She was diagnosed with SJS within a few hours and transferred to Evelina London. The care she had t...

Views: 456 Jul 10, 2016, 7:12 AM by Nickie

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Stevens Johnson Syndrome forum


IT APPEARS PREDOMINANTLY FEMALE, IS THIS TRUE?


Views: 381 Jan 1, 2016, 1:06 PM by Sue

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