Leaves patient with horrible posture. Makes patient feel rigid and stiff especially in the trunk area. I personally don't like the sensitivity in my feet, legs nor do I enjoy the sensitivity to noise, environment. My case resulted in a particular episode. This also impacts physiological areas for each person.

World map of Stiff Person Syndrome

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STIFF PERSON SYNDROME

Synonyms:
Stiff Trunk
Stiffness in body
Highly sensitivity in extremities.

Types:
SPS

SYSTEMS AFECTED

Immune system
Muscular system
Nervous system
Skeletal system
Urinary system

Symptoms

Stiff in joints

Treatments

No one treatment only pain relief.

Stiff Person Syndrome stories


OUR JOURNEY


I am a 68 year old male, born in Scotland but live in Sydney Australia who has lived with back problems since 1973, mid 1986 while holidaying in Oregon I went white water rafting on the Rogue River on an inner tube, unfortunately I was thrown off and...

Views: 943 Dec 30, 2015, 10:14 PM by David

8 YEARS


I was misdiagnosed with Lupus in 2009 and finally got the correct diagnosis through GAD testing in Oct 2015. My neurologist, who specializes in SPS, Dr. Machado in Conn is the reason I am alive today along with my children and my husband and family. ...

Views: 814 Aug 11, 2016, 1:12 PM by Jasmine Nardone-Franco

10 YEARS TO DIAGNOSIS


Symptoms started very gradually during/after first and only pregnancy in 2004. Full blown symptoms, including stiffness, drooping eyelids and soft palette, vertigo, dizziness, and altered gait by 2008. Diagnosed first with Myasthenia Gravis, and then...

Views: 669 Aug 15, 2016, 8:24 AM by Beth Berry

Z'S STORY


2009- infectious mononucleosis 2010 - diffuse toxic goiter 2011- endocrine ophthalmopathy 2013 - diabetes type 1 2013 - thyroidectomy 2014 - c-section 2015 - SPS

Views: 633 Jan 30, 2017, 7:42 AM by Z

ME. :)


My name is Stacy Mayle and I'm 47 years old. I was diagnosed with Stiff Person Syndrome (SPS) 4 years ago, after developing symptoms at age 37. It took 10 years to diagnose since it is such a rare disorder. Causing the muscles in my body to become st...

Views: 571 Feb 17, 2017, 2:21 AM by Stacy

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