My daughter Amelia was dignosed with sotos syndrome when she was 6months old, it has been a bumpy ride. She is getting there with the walking and talking and other problems she has with the help with pyshio and speech therpy from the help from groups such as brighter access and north cott, these groups are founded for kids and adults with disabities.
Amelia has two other siblings that do not have sotos who love her to pieces, Amelia has a beautiful and loving nature to her.
She would love to meet someone else with the same condition in the local area.