What are the best treatments for Sturge Weber Syndrome?

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5 answers

Medication and physio and occupational therapy and surgery where it is possible

Posted Apr 26, 2017 by Gill 1150

laser treatmennts for port wine stain, surgery and / or eye drops for glaucoma, anti-convusant medication for seizures

Posted Apr 26, 2017 by Paul 1726

anti epileptic medication
Glucoma treatment
laser therapy for port wine

Posted Mar 9, 2020 by Courtney 700

Love and patience

Fisio therapy and occupational therapy
Medication
Apointments with blood specialist, neuros, mri amd veeg, glaucoma specialists, and dermatologist.

Posted Jul 10, 2021 by Stacey 700

Translated from spanish Improve translation

hi I wanted to know how it works on this forum or website. Where is the info?

Posted Oct 27, 2017 by Melisa 100

Sturge Weber Syndrome treatments

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Stories of Sturge Weber Syndrome

STURGE WEBER SYNDROME STORIES

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AMELIA-MISS MILLIE

amelia was born Sept 2,2014. She has Sturge Weber. She had a hemi in Sept of 2015 due to seizures. She has been seizure free so far. She a port wine stain over most of her face and has had three lazier treatments so far. She had Glaucoma surgery at 4...

839

by Mary Kolb

MY SON'S STORY

I am the parent of a young man who was born in 1987. I have met many families of children with Sturge Weber syndrome as I helped form a support group.

819

by Lynn Buchanan

PAULO

Hello! I'll try to write, but my english needs improviment, ok? Paulo was born on December 14, 2007. He was born with a port wine stain on the right side of the face. A port wine stain also appears in his leg and right foot. When Paulo was six months...

763

1/4/16, 3:47 PM by Paulo Leandro Machado Viana

SEVERINE'S STORY

je suis malade depuis mes 9 mois, mais la maladie est née avec moi. Je ne peux rien faire seule, j'ai un important retard mental. Plus de crises depuis mes 12 ans l'épilepsie est stabilisée. Je vis dans un foyer médicalisé ou je me trouve très ...

735

by severine

FROM A SISTER'S POINT OF VIEW

I'm 5 years younger than my brother with Sturge Weber Syndrome and we grow up together with our parents in Sweden. We both now have our own apartments in different towns, I have a cat and my brother has a dog.�...

597

4/21/16, 6:15 PM by Emilia Fichtelius

What are the best treatments for Sturge Weber Syndrome?

See the best treatments for Sturge Weber Syndrome here

Sturge Weber Syndrome treatments

What is the life expectancy of someone with Sturge Weber Syndrome?

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Celebrities with Sturge Weber Syndrome

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Is Sturge Weber Syndrome hereditary?

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Is Sturge Weber Syndrome contagious?

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ICD10 code of Sturge Weber Syndrome and ICD9 code

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Is there any natural treatment for Sturge Weber Syndrome?

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Living with Sturge Weber Syndrome. How to live with Sturge Weber Syndrome?

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Sturge Weber Syndrome diet. Is there a diet which improves the quality of l...

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