Help us to help more people
  2. STXBP1
  3. Advice
Early intervention/therapy really made a difference in my daughters physical abilities.
by Hailey Ellison
first AED really help was Vigabatrine
by Anne
Started having seizures at 5 weeks old
by Leila2016
Finding out my daughter's diagnosis 3 years ago.
by Cheri
Keppra
by Jaylenesmommy
Sabril is a drug that controls my seizures
by Neovy
I once tryed the keytogenic diet
by James
A mi hijo le ayudó mucho la vigabatrina
by Anjhie Jimena Romero
Spinal correction surgery
by Morgan Boreen
Keppra ha risolto crisi epilettiche
by Marta
VNS device
by Joshua
Water
by LUBICA
La medicacion
by Moju
Finding a good school to help her grow, and help us as her parents to learn new ways to teach our daughter.
by Hailey Ellison
my parents and professionals keep trying to feed me oral, it cost 3 years but at age of 4 i was eating and love food
by Anne
Seizures affect Frontal, cental, and occipital parts of brain and move in those areas.
by Leila2016
Knowing that other parents struggle with the same issues, like toilet training.
by Cheri
Therapy
by Jaylenesmommy
I’m lucky to have my mum , she is my biggest advocate
by Neovy
I live wth my mum and dad
by James
Se le hizo terapias con cámaras hipervarica en Guayaquil - Ecuador
by Anjhie Jimena Romero
My mom is my strongest advocate
by Morgan Boreen
Libero da medicine
by Marta
Frequent family visits
by Joshua
Walking
by LUBICA
much exercising will help to walk independent after years.....
by Anne
Takes two types of meds to try to control seizures
by Leila2016
Joining the STXBP1 Family Facebook private page.
by Cheri
Neurology
by Jaylenesmommy
Ketogenic diet help controlled my seizures
by Neovy
I was part of the original study in Belgium that discovered the STXPB1 gene mutation
by James
El método integra
by Anjhie Jimena Romero
Combination of my medication
by Morgan Boreen
Cammina ma non parla
by Marta
Music
by Joshua
Less of brain attack
by LUBICA