What famous people have Syringomyelia? Find out which celebrities, athletes or public figures have Syringomyelia.

▷ Celebrities with Syringomyelia

Stories of Syringomyelia

SYRINGOMYELIA STORIES

VIEWS

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REGISTERED NURSE ON A MISSION TO HELP OTHERS WITH SYRINGOMYELIA

HELLO EVERYONE! MY NAME IS BETH NGUYEN RN, CEO OF WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE. I AM 38 YEARS OLD WITH A DIAGNOSIS OF SYRINGOMYELIA, INTRACRANIAL HYPERTENSION, POTS DYSAUTONOMIA, HEART FAILURE, AND PULMONARY HYPERTENSION. I HAVE A...

1501

by Beth Nguyen

IDIOPATHIC SYRINGOMIELIA... OR IS IT?

I developed a syrinx from t1 - t8. Loss of temperature feeling in left arm, shooting pains down left arm. Had a shunt placed, post surgery had sensory loss down left side and in my right leg. The shunt failed and the syrinx was growing fast again. We...

1206

by Eric

THIS CRAZY ROLLER COASTER RIDE

In 2007 I was diagnosed while pregnant with my son. I remember the dr calling and saying I had a rare condition called syringomyelia and I said syringo-what? I remember that phone call like it was yesterday. I was told I needed surgery ASAP but they ...

1175

by Alana

MY STORY

I was in a car accident on july 10th 1999 and was ejected through the windshield. It wasn't until 2006 that I became symptomatic and was disabled permanently in 2008. I have syrinx in thorasic and cervical and have had a drain placed in the cervical ...

891

4/20/16, 3:41 PM by Jennifer

Celebrities with Syringomyelia