Here you can see if Syringomyelia can be hereditary. Do you have any genetic components? Does any member of your family have Syringomyelia or may be more predisposed to developing the condition?
Absolutely , The connective tissue disorder that I have is genetic. I am fourth-generation to be diagnosed with fibrosis. One of my children has spina bifida occulta. Many of my other family members have spinal disease as well.
It's not known yet, but there are people with Syringomyelia who have had children who have been diagnosed also at young ages. So its possible but not proven.
HELLO EVERYONE!
MY NAME IS BETH NGUYEN RN, CEO OF WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE. I AM 38 YEARS OLD WITH A DIAGNOSIS OF SYRINGOMYELIA, INTRACRANIAL HYPERTENSION, POTS DYSAUTONOMIA, HEART FAILURE, AND PULMONARY HYPERTENSION. I HAVE A...
I developed a syrinx from t1 - t8. Loss of temperature feeling in left arm, shooting pains down left arm. Had a shunt placed, post surgery had sensory loss down left side and in my right leg. The shunt failed and the syrinx was growing fast again. We...
In 2007 I was diagnosed while pregnant with my son. I remember the dr calling and saying I had a rare condition called syringomyelia and I said syringo-what? I remember that phone call like it was yesterday. I was told I needed surgery ASAP but they ...
I was in a car accident on july 10th 1999 and was ejected through the windshield. It wasn't until 2006 that I became symptomatic and was disabled permanently in 2008. I have syrinx in thorasic and cervical and have had a drain placed in the cervical ...