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What is the prevalence of Syringomyelia?

How many people does Syringomyelia affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Syringomyelia
3 answers
The prevalence of this disease is Unknown, statistically speaking more women tend to get this than men. This could be due to childbirth that requires a spinal anesthetic. It’s something that could cause scarring of the spinal cord, they are trying to ban this practice in France. It is known in the SM community that epidural pain blocks can further exacerbate this disease. It is not approved by the FDA

Posted Mar 22, 2018 by Tammie 4000
Estimated about 8.4 cases per 100,000 people. Occurs more frequently in men than in women. The disorder usually appears after age 30, but can develop in childhood or late adulthood.

Posted Sep 20, 2018 by Austyn 3500
Translated from spanish Improve translation
It affects more adults

Posted May 16, 2017 by María Angélica González gallon 1800

Prevalence of Syringomyelia

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World map of Syringomyelia

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Stories of Syringomyelia

SYRINGOMYELIA STORIES
Syringomyelia stories
HELLO EVERYONE! MY NAME IS BETH NGUYEN RN, CEO OF WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE.  I AM 38 YEARS OLD WITH A DIAGNOSIS OF SYRINGOMYELIA, INTRACRANIAL HYPERTENSION, POTS DYSAUTONOMIA, HEART FAILURE, AND PULMONARY HYPERTENSION.  I HAVE A...
Syringomyelia stories
I developed a syrinx from t1 - t8. Loss of temperature feeling in left arm, shooting pains down left arm. Had a shunt placed, post surgery had sensory loss down left side and in my right leg. The shunt failed and the syrinx was growing fast again. We...
Syringomyelia stories
In 2007 I was diagnosed while pregnant with my son. I remember the dr calling and saying I had a rare condition called syringomyelia and I said syringo-what? I remember that phone call like it was yesterday. I was told I needed surgery ASAP but they ...
Syringomyelia stories
I was in a car accident on july 10th 1999 and was ejected through the windshield. It wasn't until 2006 that I became symptomatic and was disabled permanently in 2008. I have syrinx in thorasic and cervical and have had a drain placed in the cervical ...
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