Support, empathy, from friends, family is not always easy to come by. Most important is Doctors who know their patients have this and are not willing to educate themselves or help their patient seek proper medical care. Dare I say, and this is MY OWN personal feeling/experience. IT's all about the MONEY. This can lead to frustration, anxiety, depression, isolation. As the saying goes: Walk in my shoes for a day, before passing judgement and opinions on something you may no nothing about. This goes with ANY illness, disease.