Tarlov Cyst prognosis

What is the prognosis if you have Tarlov Cyst? Quality of life, limitations and expectatios of someone with Tarlov Cyst.

11 answers

It is a progressive neurological disease. the longer and the more pressure on the nerve roots, the more progressive.

Posted Jul 23, 2021 by Stichting Overdruksyndroom NL

Pain Progression

Posted Jan 20, 2018 by dhedge42 2500

It is a chronic disease. If I had not had a type of surgery I would have been in a wheelchair or bed bound by now. Progression is not a set time frame each person is different. Some Cysters have been dealing with no surgery for 10 years or more. Mine progressed fast, within 10 months I was losing body functions. If I had had caring doctor's from the start I might could have slowed the progression with a diet/lifestyle change. Stay away from Physical therapy, it expedited the progression. Water therapy is the way to go.
Can it get better? I personally do not believe it.

Posted Jun 18, 2018 by Ze 2520

Once you have surgical intervention you can start to see improvements in many ways. Although not all patients are in the same situation so we should not expect outcomes to be the same as others with thus disease

Posted Jun 19, 2018 by Debbie Dronfield 2500

Tarlov is chronic and progressive disease. It rarely gets better

Posted Jun 19, 2018 by Lynn 2500

If the cysts are symptomatic it is a chronic condition that can progress.

Posted Dec 10, 2019 by Jess Carhart 2500

It is a chronic condition

Posted Jul 22, 2021 by Michelle Tamplin 2500

This is very depending per person, but it is still a progressive disease

Posted Jul 25, 2021 by SOSNL 2500

Symptomatische Tarlov-cyste ziekte is een progressieve aandoening waarbij uiteindelijk de dag zo veel mogelijk liggend doorgebracht moet worden om zo min mogelijk pijn/ongemak te ervaren. Sommigen zijn een tijdje verlost van de pijn/ongemak indien de Tarlov-cyste operabel is echter, op een andere plek kan na verloop van tijd weer een Tarlov-cyste ontstaan.

Posted Jul 26, 2021 by Founder SOSNL 2500

Symptomatic Tarlov Cysts cause pressure on the surrounding nerves and over time can do irreparable damage to those nerves. This makes the prognosis very dim for those people who go undiagnosed for years. Surgical treatment has a far better outcome when done early.

Posted Jul 27, 2021 by KetoGma 2500

They are not life threatening but they can cause chronic pain very severe

Posted Oct 25, 2022 by Tania 2500

Tarlov Cyst prognosis

Stories of Tarlov Cyst

TARLOV CYST STORIES

VIEWS

BY

MY TARLOV NIGHTMARE

My nightmare began with an accident while on duty in March 2011. I was the passenger in a motor vehicle when the accident happened. After having an MR I scan done it was reported that I have multiple Tarlov cysts on my spine (too many to count). I ...

3110

by Heidi Sampieri

THE FOREVER STRUGGLE

Hi, I am Lisa. I have has several ct scans and mri's through the years which showed terms such as perinueral cysts, and Tarlov Cysts for many years. When I would ask what they were and if they posed any problem, I would be quickly brushed off and tol...

1486

by Lisa

HOPE.

I fell from a horse 4 years ago landing on my tailbone and after an X-ray they could see I had bent it! After several weeks of chiropractic treatment I was back in the saddle and felt fine. Then in feb 2015 I I had a fall whilst skiing. It was partic...

1310

by Emma kyte

MY LONG STORY.....

When I was pregant at 21, I ended up on STD due to having severe pain in my sciatica - I worked a desk job and could not handle sitting for long periods of time. Even after I gave birth, I had severe lower back pain. I tried everything - chiropractic...