Which are the symptoms of Tarlov Cyst?

Worst symptoms for daily life:
- Piercing nerve pains that shoot from sacrum down leg, and no pain killer can touch it as its neurological
- Inability to sit or stand for more than 30 minutes at a time (makes working very difficult when you have meetings), and never being comfortable when vertical as sitting felt like a sharp rock is under you, and standing radiates leg pain. Only lying on my side with a pillow between my legs gave any relief.
- Sharp pelvic pains that made intimacy very difficult

There are many other symptoms such as incontinence and constipation which I did not have, but would be very limiting to daily life. Other symptoms were somehow livable.

The worst symptoms for me would have to be the pressure. Sometimes I feel like my back will just explode. Sitting is also very uncomfortable much of the time because of the pressure.

The symptom i would get rid of first would be the jolting pain that causes me to collapse when i try to bend forward or lift heavy objects. I know i have the physical strength to get it done, but i end up really hurting afterwards.

The word symptoms are nerve pain. From my experience I've had huge issues with pain when sitting.

Nerve pain that takes your breath away

Pain in the area of the nerves affected by the cysts, especially the buttocks
Weakness of muscles
Difficulty sitting for prolonged periods
Loss of sensation on the skin
Loss of reflexes
Changes in bowel function, such as constipation
Changes in bladder function, including increased frequency or incontinence
Changes in sexual function

Numbness in my legs, pins & needles in legs, feet etc. Headaches, excrutating sacrum pain, mood changes, muscle spasms in whole body

Sitting on rocks, nerve issues down legs to toes.

Debilitating pain in your sacrum

Pain in my lower back to my feet, it reached around through my hips. Urine trouble, bowel trouble. Diagnosed with fibromyalgia

Bowel and bladder control
Back pain
pins and needles in the legs and feet
cramps in legs and feet

Pain in the area of the nerves affected by the cysts, especially the buttocks.
Weakness of muscles.
Difficulty sitting for prolonged periods.
Loss of sensation on the skin.
Loss of reflexes.
Changes in bowel function, such as constipation.

Severe, and debilitating pain, Numbness, Urinary issues (urine retention, incontinence), Bowel issues (constipation, mainly),

Pain when sitting is the most unbearable symptom. Then the nerve humming in the legs and feet.

Cervical Tarlov Cysts bilaterally on C 5,6,7 feels like daily chronic burning, stabbing and tingling pain that radiates from my neck down to my right hand. The pain compounds when I write, use a mouse or text. I have had this pain for 13 years and I’m unable to work in my educated field or find adequate medical care.

Bowel and bladder dysfunction, numbness in legs, sacral spine pain

Dolor lumbar, ciatalgia, pérdida de fuerza en miembros inferiores (si los TC son sacros), afectación al Aparato Urinario y Digestivo, dolor de cabeza

Lower back pain
Hip pain
Urinary issues

Back pain
Numb pain & sharp pain
Pins and needles

Множество симптоми, като една част от тях са: сакрална болка, схващане, пиренеална болка, ректална болка, болка при полов контакт, изгаряща болка, заболявания на пикочен мехур, дисфункция на чревният тракт, болка в долната част на гърбът, болка в горната част на гърба, шията, замъглено зрение, болка в гърдите, слабост и спазми в долните и горните крайници, парастезии в зависимост къде се намират кистите и много други.

Бих се отървала от парастезиите и изгарящите болки.

Perineal Pain, Dyspareunia/Genital Pain, Hip Lateral Pain, Leg Pain, Pain in One Foot/Feet, Perineum Paraesthesia, Buttocks, Legs, Foot/Feet Paraesthesia, Foot Drop, Acute/Chronic Cauda Equina Syndrome, Abdominal Pain, Bladder Pain, Anal Pain, bladder and bowel dysfunction, urinary/faecal incontinence,
increasing pain when sitting and standing, increasing pain with walking, valsalva increases pain, exercise increases pain, leg restless, persistent genital agitation (PGAD), increasing pain when sitting and standing, weakness in legs/feet, increasing pain with walking, valsalva increases pain, exercise increases pain, restless legs, persistent genital arousal syndrome (PGAD), significant neck/arm pain, headache (hypertension headache/hypotension headache).
The increased/disturbed pressure of the cerebrospinal fluid in the spinal canal and brain causes these extensive symptoms.

See als in this article from 2017: Electromyography and a literature review provides insight into the role of sacral perineural cysts in unexplained chronic pelvic, perineal and leg pain syndromes

After needle EMG, abnormalities in multiple lumbo-sacral nerve root myotomes were noted in all patients and these abnormalities were bilateral in 80% of patients. In 25 (83%) patients, the pain was in two or more dermatomes at the same time. Only 17 (57%) patients mainly complained of pain in one leg. Ten (59%) of these 17 patients had the greatest TC on the same side as the most severe pain. In 15 of the 17 (88%) patients, the most severe EMG abnormalities were found in the most painful leg. In all patients, TC and/or nerve root dilatations were found on all nerve roots of the painful dermatomes.
Three patients with symptomatic sacral TCs and EMG abnormalities in the sacral nerve root myotomes also had severe thoracic pain in a dermatomal pattern. Therefore, an EMG of the thoracic paraspinals was performed and in these cases EMG abnormalities were detected in the corresponding dermatomes. The MRIs showed nerve root dilatations in the corresponding nerves and the nerve root fibers were widened.
In this study, patients with sacral TCs often complained of neck pain. An MRI of the cervico-dorsal spine was therefore assessed, if available. Because the headaches commonly reported in our patient group may reflect an increase in pressure in the brain tract.
This study explored symptomatic Tarlov Cyst pathogenesis and identified the typical patterns of symptoms caused by STCs, the literature from 1955 through 2016 was searched for relevant assessments and case reports on patients with TCs.
Needle EMG/NCS conduction tests is a less invasive way to diagnose symptomatic Tarlov cysts.

https://sosnl.nl/overdruksyndroom/
Idiopathisch cerebrospinaal drukdysregulatiesyndroom (overdruksyndroom)

Door een gestoorde drukregeling in de hersenen en het ruggenmerg kan de druk in het ruggenmergkanaal oplopen en kan ruggenmergvocht in de zenuwen worden geperst. Deze verhoogde druk leidt tot irritatie van de zenuwvezeltjes met in eerste instantie pijn en tintelingen /slapte /slapend gevoel tot gevolg. De isolatielaag rond de zenuw kan vervolgens uitzetten op een plaats waar ze het zwakst is. Dit gebeurt vooral in het heiligbeen, waar de druk het hoogst is omdat we rechtop lopen en veel zitten. Maar niet alleen daar, ook in de lage rug, de bovenrug, de nek en t.h.v. de hersenzenuwen.

De verhoogde druk veroorzaakt over het gehele ruggenmergkanaal pijnklachten in het bekken, de benen, de voeten, de romp, de nek, de armen, het gelaat, de hals en het hoofd.

Omdat de eerste symptomen enkel pijn en /of tinteling, een slap gevoel en slapend gevoel in ledematen zijn en dit niet te meten is, kan de diagnose niet of laat worden gesteld. Er wordt dan verondersteld dat niet de cysten, maar de artrosetekens die men op de MRI ziet, verminderde fysieke conditie en/of psychologische factoren verantwoordelijk zijn voor de pijn.

Mogelijke symptomen door overdruk in ruggenmerg en zenuwwortels
* Veel patiënten hebben al op jonge leeftijd last van onverklaarbare of ernstige hoofdpijn, rugpijn of buikpijn.
- De meest voorkomende symptomen zijn die van een chronisch cauda equina syndroom aangezien altijd meerdere zenuwwortels in het heiligbeen links en rechts onder druk komen te staan.
- lage rugpijn en/of pijn in het heiligbeen, kan in opstoten optreden (‘acute blokkage’)
- uitstralende pijn in het been
- pijn rond de heup
- pijn in de bilspier
- de pijn neemt typisch toe bij zitten
- krampen in de benen
- zwaktegevoel in de benen (niet goed meer recht kunnen na hurken)
- rusteloze benen
- pijnscheuten (vooral in het heiligbeen)
- pijnlijke en/of slapende voeten, krampen in de voeten, ‘bekneld’ gevoel van de voeten in de schoenen, koude voeten
- de patiënt kan niet meer snel wandelen of niet bergop wandelen zonder pijn, significant tragere wandelsnelheid, soms wat gestoorde gang waardoor tegen mensen en dingen aanbotsen of tegen degene die meewandelt
- pijn en slap gevoel rond de anus, de bilnaad en de geslachtsdelen, pijn bij betrekkingen, pijn vaginaal, t.h.v. de teelbal of de penis
- overgevoeligheid van de huid van de buik, het bekken en de schaamstreek, waardoor ondergoed of strakkere kleding niet wordt verdragen
- blaasproblemen: niet onmiddellijk kunnen beginnen plassen, de blaas niet volledig leeg kunnen plassen, moeten meepersen om de blaas te ledigen, geprikkelde blaas met voortdurende drukgevoel op de blaas, vaak moeten plassen, gevoel van hoogdringendheid, pijnlijke blaas, niet goed meer voelen of de blaas vol is
- darmsymptomen: constipatie, afgewisseld met diarree, buikkrampen, hoogdringendheid, ...
- sluitspierproblemen met meestal lichte incontinentie voor urine en stoelgang, ‘veel toiletpapier nodig hebben om zich schoon te maken’, pijn, steken, drukgevoel of krampen in de anus
- potentiestoornissen, moeilijk tot orgasme komen
- pijn in de nek en arm(en), slapende hand(en), ‘tenniselleboog’, krachteloosheid in de armen, koude handen
- tussenribpijn, pijn op de borst (door uitstraling naar voor), ‘syndroom van Tietze’
- Niet (of niet te lang) kunnen zitten en/of staan
- Pijn toename bij lichamelijke inspanning welke verminderd bij liggen
- fysiek belastend werk en sporten is niet meer mogelijk
- Bekkeninstabiliteit
Bovendien kan ook overdruk in de hersenzenuwen ontstaan
- Dubbelzien, pijn aan de ogen, of pijn aan de oogspieren bij oogbewegingen
- Trigeminusneuralgie, gelaatspijn, tintelingen of voosheid in het gezicht, kaakpijn, gespannen kaakspieren, tandklemmen
- Duizeligheid, draaierig.
- Gestoorde smaak, speekselvloed of droge mond (dorst)
- Heesheid, moeite met slikken
- Moeilijk te behandelen hoofdpijn
- Oorsuizen, zich verspreken, niet op woorden en namen kunnen komen, de draad verliezen, lichte geheugenstoornissen, …
- Op de voorgrond staande vermoeidheid
De klachten ontstaan of verergeren vaak na een trauma en/of tijdens de zwangerschap. (Bekkeninstabiliteit).
Klachten ontstaan geleidelijk of heel acuut, komen en gaan en verschillen in lokalisatie en intensiteit van de ene patiënt tot de andere, maar kunnen in sommige gevallen zo invaliderend zijn dat de patiënt aan huis of bed gebonden is

Pain in buttocks, hips and legs. Unable to sit or stand for any length of time. Bowel and bladder issues. Pain in private areas.

* Many patients suffer from unexplained or severe headaches, backaches or abdominal pain at a young age.
- The most common symptoms are those of a chronic cauda equina syndrome, since several nerve roots in the left and right sacrum are always under pressure.
- low back pain and/or pain in the sacrum, may occur in flare-ups (‘acute blockage’)
- radiating pain in the leg
- pain around the hip
- pain in the buttock muscle
- pain typically increases with sitting
- leg cramps
- feeling of weakness in the legs (not being able to straighten properly after squatting)
- restless legs
- shooting pains (especially in the sacrum)
- sore and/or sleeping feet, cramps in the feet, feeling of pinching in the feet in the shoes, cold feet
- the patient can no longer walk quickly or walk uphill without pain, significantly slower walking speed, sometimes somewhat disturbed gait causing bumping into people and things or the person walking along
- pain and limp feeling around the anus, the buttocks and the genitals, pain during intercourse, pain vaginal, at the center of the testicle or the penis
- hypersensitivity of the skin of the abdomen, pelvis and pubic area, as a result of which underwear or tighter clothing is not tolerated
- bladder problems: unable to start urinating immediately, not being able to urinate completely, having to push to empty the bladder, irritated bladder with constant pressure on the bladder, frequent urination, feeling of urgency, painful bladder, feeling unwell or the bladder is full
- intestinal symptoms: constipation, alternating with diarrhoea, abdominal cramps, urgency, ...
- sphincter problems with usually mild incontinence for urine and bowel movements, 'need a lot of toilet paper to clean yourself', pain, stinging, feeling of pressure or cramps in the anus
- potency disorders, difficulty reaching orgasm
- pain in the neck and arm(s), sleeping hand(s), "tennis elbow", weakness in the arms, cold hands
- rib pain, chest pain (due to radiation to the front), Tietze's syndrome
- Not being able to sit and/or stand (or not for too long)
- Pain increase with physical exertion which is reduced when lying dow
- physically demanding work and sports are no longer possible
- Pelvic instability
Double vision, eye pain, or eye muscle pain with eye movement
- Trigeminal neuralgia, facial pain, tingling or numbness of the face, jaw pain, tense jaw muscles, tooth clenching
- Dizziness, vertigo.
- Impaired taste, salivation or dry mouth (thirst)
- Hoarseness, difficulty swallowing
- Hard-to-treat headaches
- Ringing in the ears, making a mistake, not being able to come up with words and names, losing the thread, mild memory disorders, ...
- Prominent fatigue

Pain, sciatica, sacral pain, muscle weekends and atrophy