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Is it easy to find a partner and/or maintain relationship when you have Trigeminal Neuralgia?

People with experience in Trigeminal Neuralgia give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Trigeminal Neuralgia. What are the possible difficulties in having a relationship?

Couple and Trigeminal Neuralgia
7 answers
It is not easy to find a partner or maintain a good relationship when you have been diagnosed with TN, as it can have a serious impact on a person's quality of life.

See the following:

http://fpa-support.org/helping-your-relationship-survive-despite-facial-pain/

Posted Jun 12, 2017 by Margo 3125
No.
No.
No.
No.
Again: No.
(Have I used the required 20 characters yet?)

Posted Jul 29, 2017 by Christina 1100
No,personally it was very hard to explain the amount of pain i am in and try to show how i really cant do ordinary things anymore. It is important to show your partner that you cant do things not that you dont want to do them.

Posted Jul 30, 2017 by Poison Yvy 2015
It can be very difficult for a partner, it's a serious and debilitating condition, the person needs resilience and must care very much. It's horrible to see a person suffering from this.

Posted Aug 6, 2017 by Michelle 2050
This disease and the toxic meds that treat it are negatively linked to stress confusion and anger. Your going through a constant loss of self grieving in the 5 stages. It's as much of a strain on the caregiver.

Posted Feb 4, 2018 by James 2500
That can be a super challenging one! My husband is an amazing man who stuck by my side. But as my caretaker, this is taking a huge toll on him and our marriage. The pain I experience has an effect on nearly every aspect of our life. Having a partner who loves you and is willing to stick by you while you figure out how to manage this disease can make things so much better!
I try to keep in mind that this affects his life as well, and I encourage him to go do things without me when my pain holds me back from plans we made or family events. We talk often, and are open with each other about what we experience with this and how TN and dealing with the pain from it makes us feel. It can even affect our intimate relationship, so I make sure when I'm not in pain that I give him extra love and appreciation

Posted Feb 23, 2018 by Alicia 2600
I suppose it depends on the individual. Intimacy is difficult if not impossible with a partner, so if it is intimacy you seek, Trigeminal Neuralgia will certainly get in the way.

As to the question of difficulty in finding a partner, I don't know. I was fortunate that my wife has remained my staunchest supporter through all the ups and downs of this journey. Maintaining relationship has not been easy; in fact, it has required even more hard work than traditional views of marital practice reveal.

Communication is a major factor. Always let the other person know about your condition; let them know that you need space to be afflicted by it and that there is nothing that they can do for you except be there and offer encouragement, support, and love. Keep them informed of any progress or relapse so that they can help and be sources of information for your physician(s). Be up front about having this rare disease because it can scare a potential partner as well as one that you might already have. Learn to trust the wisdom of your partner, especially if they have prior experience with this disease. Educate them if they do not know what it is or how to offer support.

Posted Feb 13, 2020 by Eric 2550

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