Living with Trigeminal Neuralgia. How to live with Trigeminal Neuralgia?

First step is to except it. And try to be positive. At times it's hard so I get on my support group and vent.

You can hope for the support of loved ones and a future cure.

Think you fast can end up depressed but isnt nothing to do but find your own way of living. Take it easy and try to find stuff that can make somekind of pain relife. And most of all take day by day or even hour by hour.

Find a treatment plan that works and stick with it. Routines are important, journaling everything, make sure all Dr are on board and connected to each others orders. If the plan is not working go back to the drawing board, make a new plan

Of course you can be happy with Trigeminal Neuralgia! You first have to embrace the fact that "you" are now "you2" which means that your "normal," your baseline if you will, has changed, and may never return. Once you embrace your limitations, should there be any, as your norm, limiting yourself to those activities which you find enjoyable and that do not trigger pain will no longer feel limiting! It is important not to try and deal with this condition alone; surrounding yourself with supportive individuals is important.

It's not an easy answer but not an impossible one too. We should change our lifestyle to manage pain.remember we are not the only one on this earth who is suffering and Hope could be a big motivation. Choose to do something close to heart. If someday you can't get out of the bed,it's OK...No big deal. Stress could be biggest trigger. So relax,life is beautiful

Try to live as balanced of a life as possible, learn to cope as best you can.

Ditto- What Sandy said on March 21

Recognize the pain is unpredictable & strong! Keep supportive folks nearby. Join a support group & ask questions! If you become a candidate for surgery - do it! The fear of surgery is nothing compared to the intense piercing pain!

I have lost quality of life. Sometimes I am down for several days in6 row.

TN is a very challenging condition to live with, since it is incurable.

Nevertheless, it is possible to be happy while living with TN.
It is important to enjoy your pain-free moments as much as possible and to fill these moments with joy and pleasant activities that provide you with a sense of achievement.

Make sure you engage in activities that give you pleasure and provide you with some income as well.
You can work from home, start up your own business or enjoy a hobby such as knitting, crocheting, painting or making jewellery.

Try not to feel like a burden (you are not a burden!) or guilty because there are things you can no longer do.
Accept the fact that you have a chronic neurological disorder that comes with certain physcial limitations and focus on what you CAN do instead.
You will most likely go through a process of mourning after being diagnosed with TN, resulting in acceptance.

Try and find support.
A social network is necessary to help you cope and to provide you with the moral and material support you need.
It is also a good idea to become a member of a FB group for TNers or to find other people in your neighbourhood who have also been diagnosed with chronic pain and who understand how you feel.
After a certain period of living with TN, you will be able to support others with the condition and provide them with the information they need, which will also give you a sense of purpose.

Try and live in the present as much as you can and do not worry too much about the future.

Endure it, and see a clinical psychologist if the pain gets too much - confide in people you can trust. You can be happy except during an attack - but expect to experience depression if you become chronic.

Its hard to live with TN, especially because alot of people dont know what TN is. But support from your loved ones makes life worth living.

Accepting you have a lifelong health condition is part of the process, connect with others who also suffer, be your own advocate medically.

If you have TN you don't have a choice about living with it. You need an understanding Dr. to help you

Avoiding your triggers as much as possible. Using straws for drinks and eating soft foods when you have an attack. Wear scarves over your face when going outside. See a neurologist regularly and have your pain meds reviewed on a regular basis. Take your meds regularly. Use heat or cold packs, whichever works for you best. Take Vitamin B12. Use a good support network for advice. Use a card when you are out and about that tells people you have TN and you may be temporarily unable to speak. Educate your friends, family and co-workers so they know what to expect. Use fluoride mouthwash when you can't brush your teeth. Educate your dentist, they don't always know about TN and if he's not understanding, find another. Advise your hairdresser of your condition, make sure the water is warm enough when they wash your hair. When you can't wash your hair use dry shampoo or wear a scarf or a hat.

Day by day live be greatly , humble, count it a good day when it's one above ground. Be the person who has grace in pain .

Living with trigeminal neuralgia, there have been times were the living part of that statement felt like a joke. So if you're in that spot have heart it can get better! Working with a neurologist who is familiar with TN could help speed along your process in a huge way!
Finding what triggers your pain, helps you understand how to avoid attacks. If I had it to do over again learning that would be the first thing I would focus on. Start living a healthier lifestyle it's not going to cure you, but it's going to help immensely!
Have a great support system, you're going to need to lean on people who love you and care about you in times when the pain is too much for you to handle. If you find yourself without a good support system find one in a group on Facebook. Just having other people who have TN and can understand the situation you're in helps.

Well you first just have to find out what medicine, and/or treatments help reduce the pain. then, accept that this is something you have to deal with, and live your new life the best way you can.

Is it possible to be happy with Trigeminal Neuralgia? I don't know. Certainly there is some relief from it when taking one's meds, but the real happiness comes when the pain shocks are alleviated. There again, it depends on the individual.

I think it is safe to say that one is in a high gear survival mode when suffering from this disease, and one can only thrive when its symptoms are alleviated when the medications lose their effectiveness. To be sure, a person can thrive and live a "normal" life post-surgery with the proviso that Trigeminal Neuralgia is incurable—but not fatal—and might return sometime along the way.

It is a very hard disease to live with you have to live on medicine and you have to go through surgeries sometimes they work and sometimes they don't and you have to do a lot of praying if you believe in God