World map of Usher Syndrome


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Usher Syndrome stories


MY 100 RUN MEDALS CHALLENGE


DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE FACEBOOK PAGE   Hello, I would like to show you my Facebook Page, Deafblind Runner’s 100 Run Medals Challenge.   It’s about Deaf & Partially Sighted (Usher Syndrome) runn...

Views: 1057 Feb 5, 2016, 9:13 AM by James Clarke

CARRIE ANN'S STORY


When I was twenty-one years old, I was diagnosed with Usher Syndrome Type II (part of the Retinitis Pigmentosa family). As a young adult, I had two passions: writing (both as a fiction writer and as a journalist) and sports. Once I received the diag...

Views: 939 Feb 4, 2016, 9:26 AM by Carrie Ann

TINNE'S STORY


Meer weten? Klik op de links hieronder Want to know more? Click the links below (It's in Dutch, but you can use Google Translate if you want) www.webmus.be : mijn website /my website (Dutch) www.ushersyndroom.be : informatie over Usher /...

Views: 878 Feb 4, 2016, 1:11 PM by Tinne

DIAGNOSED AGE 23


i am Usher 2A.

Views: 838 Feb 4, 2016, 11:00 AM by Claire

A POSITIVE STORY


When I was first diagnosed with Usher type II it hit me hard. I was 18, working as a plumber and training to do gas work. I had grand plans to start up my own business and advertise to single mums and pensioners who did not want a man in the house. I...

Views: 836 Feb 4, 2016, 6:09 PM by Emma

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