DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE FACEBOOK PAGE
Hello, I would like to show you my Facebook Page, Deafblind Runner’s 100 Run Medals Challenge.
It’s about Deaf & Partially Sighted (Usher Syndrome) runn...
When I was twenty-one years old, I was diagnosed with Usher Syndrome Type II (part of the Retinitis Pigmentosa family).
As a young adult, I had two passions: writing (both as a fiction writer and as a journalist) and sports. Once I received the diag...
Meer weten? Klik op de links hieronder
Want to know more? Click the links below (It's in Dutch, but you can use Google Translate if you want)
www.webmus.be : mijn website /my website (Dutch)
www.ushersyndroom.be : informatie over Usher /...
When I was first diagnosed with Usher type II it hit me hard. I was 18, working as a plumber and training to do gas work. I had grand plans to start up my own business and advertise to single mums and pensioners who did not want a man in the house. I...
5 people with Usher Syndrome have taken the SF36 survey. Mean of Usher Syndrome is 2032 points (56 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
