Keep positive
HSP Vasculitis
Even when I was in pain, I would get up and try to carry on with my normal life.
clean eating
Good hydration and fish oil
Excellent care from my physicians
My wife,dog,family and faith
Let others help from time to time, it's not a sign of weekness.
Family always being there for me
calpol and inbufen
Thank God for our great NHS, where would we be without them.
Great circle of doctors!
I see an acupuncturist and chiropractor regularly.
I have diabetes, high blood pressure, bipolar, anxiety, depression and a host of other issurs
Positive attitude
MMF
I accept my "new normal" and realize it changes rapidly. I know how to say "no" to people and I listen to my body. Sleep when I need it.
I was immediately prescribed Prolastin C Infusions, which are given once a week, for life.Also checking my oxygen stats daily.
My husband is my rock and my support
Eating Smaller Meals More Frequently
My consultant who listens
Quick diagnosis and immediate Cytoxan infusions
Living by the salt water helped me not have as much sinus problems.
Un swerving and dedicated care by my wife
Essen enzymreicher Nahrung, bei bestehender Metallintoxikation kombinieren mit Bindemitteln
learn to listen to youre body .
Magnesium, from Epsom salts
Having my 'RheumyMD' not 'afraid' to continue intensive, effective intravenous infusion therapy with 'chemo'therapy (Rituxan & IVIg/IntraVenous Immunoglobulin) on a more 'regular' basis, vs. waiting until I almost need to be taken to my hospital's ER beca
lots of walking
My grandson, Lalo
Procain-Basen-Infusionen (NaHCl 80 ml/ Procain 1% 8 ml)
My GP organising a support group of various specialists, from cardiologist to lymphoedema therapist.
positivity
Naturopathic remedies
A boss who insisted I went to work everyday even if it was for 15mins - I was unable to drive through pain and he sent a driver to fetch me and take me home - it really helped get my mind off the pain
EGPA / CSS
Retuxamab
Support of family n friends
Supportive family
Facebook Groups titled: "Vasculitis Foundation Discussion Group", "Takayasu's Arteritis" and "Vasculitis Warriors from India"
Connecting with other that have vasculitis.
recognizing and respecting my new limits of physical activities, the need for proper rest, and coming to terms with the fact that even though I am determined to get better, I now have a new norm.
Gramdma who is always reminding me to stay positive
remission declaration 1.5 years ago
Great doctors
Inner Strength
Medication
Taking one day at a time
Accepting my "new normal" for what it is gratefully
Patience