- Visual Snow
- Interviews
Luigi Danilo's interview
How did all start?
It did not start. I think I always had this feature.
Do you already have a diagnosis? How long did it take you to get it?
No
For what medical specialties have you been treated? What has been the most useful specialty for your?
None
What has been the most useful thing for you so far?
I don't know any cure
What have been your biggest difficulties?
Focusing exact point because many "pixels" of the "static" effect moves around it.
Having a natural view of a homogeneous surface (there is no a "green wall". It is completely full of noise with millions colors moving on that surface that disturb the vision).
Sometime in the true silence I hear soft tinnitus (in the form of a continuous noise). That's a little bit annoying, however not so hard to live with.
How has your social and family environment reacted? Have your social or family relationships changed?
No, I think I developed a continuous adaptation to the phenomena, and only some times I notice it in a clear manner. However I'm sure it's always persistent, like if my brain produces something wrong since I was born, and generally I feel tired, there inside my head (I don't know if the fatigue is correlated).
What things have you stopped doing?
no one, I think. I don't live it as a deep health problem, just a vision disturb. I would like to know how should really be my normal vision.
What do you think about the future?
I'm sure that networking can help the phenomena. This is the first site on which I could find a network to correlate people having the same trouble. I think that Youtube also helped on letting "normal" people understand and concretely imagine the phenomena. I never could use words in such a succesful way with my parents, relatives, friends, and colleagues.
So far, which years have been the best years in your life? What have you done during them?
This is not relevant, I think.
What would you like to do if you didn’t have your condition?
The same, I think. I suspect (but I don't have scientific measures to say it) I would be more relaxed and reactive in my life
If you had to describe your life in a sentence, what would it be?
A computer science with the (serious) hobby of music,
Or a musician with the (serious) hobby of computer science, and many other passions.
Finally, what advice would you give to a person in a similar situation?
Really I don't know. Just "Stay calm", I could live all my life with no significant conditioning, except the disturb sensation, they will find some treatments for us. I think we will be really surprised if in future we could see the real "normal" vision, and for us it will be a wonderful present. In the meanwhile, we can live a (almost) perfect normal life.
