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What is the prevalence of Acute Disseminated Encephalomyelitis?

How many people does Acute Disseminated Encephalomyelitis affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Acute Disseminated Encephalomyelitis

Acute Disseminated Encephalomyelitis (ADEM) is a rare neurological disorder characterized by inflammation in the brain and spinal cord. It primarily affects children and adolescents, but can also occur in adults. The exact prevalence of ADEM is not well-established, as it is often misdiagnosed or underreported. However, studies suggest that it occurs in approximately 0.4 to 0.8 cases per 100,000 individuals per year. ADEM is considered a relatively uncommon condition, but its impact on affected individuals can be significant.



Acute Disseminated Encephalomyelitis (ADEM) is a rare neurological disorder characterized by inflammation in the brain and spinal cord. While it can affect individuals of all ages, it is most commonly seen in children and adolescents. The exact prevalence of ADEM is difficult to determine due to its rarity and the lack of comprehensive data. However, studies suggest that it occurs in approximately 0.4 to 0.8 cases per 100,000 individuals per year.


ADEM is typically triggered by an infection or an immune response following a vaccination. It often presents with symptoms such as fever, headache, confusion, seizures, and weakness in the limbs. The condition can progress rapidly, leading to neurological deficits and even coma in severe cases.


Early diagnosis and prompt treatment are crucial in managing ADEM. Treatment usually involves high-dose corticosteroids to reduce inflammation and other supportive measures. With appropriate medical intervention, many individuals with ADEM experience significant recovery, although some may have residual neurological impairments.


Given the rarity of ADEM, it is important to consult with healthcare professionals for accurate diagnosis and appropriate management.


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Stories of Acute Disseminated Encephalomyelitis

ACUTE DISSEMINATED ENCEPHALOMYELITIS STORIES
Acute Disseminated Encephalomyelitis stories
Our son was 3 when he was diagnosed with ADEM. He just turned 4 on Tuesday. It's been 8 months since his attack set in on his brain and spine. He has recovered very well although he still continues with therapies ot, pt, and speech 2 days a week. 
Acute Disseminated Encephalomyelitis stories
At 6yo I developed ADEM from vaccines... had chorea symptoms, and seizures, auditory and visual hallucinations, and headaches, and slurred speech and blurred vision, and wound up in a coma for 5 days... my white cells were at 42k and they were attack...
Acute Disseminated Encephalomyelitis stories
This is a bit old & long-winded, so if you wanna cut to the chase, scroll down to 'UPDATE 17.5.17'... otherwise, I hope you read on... On 23rd January 2015, I was admitted to hospital suffering loss of control over my legs, chronic fatigue, blurred ...

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