19

Is it easy to find a partner and/or maintain relationship when you have Adult-onset Stills Disease?

People with experience in Adult-onset Stills Disease give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Adult-onset Stills Disease. What are the possible difficulties in having a relationship?

Couple and Adult-onset Stills Disease

Is it easy to find a partner and/or maintain a relationship when you have Adult-onset Stills Disease?


Adult-onset Still's Disease (AOSD) is a rare inflammatory disorder that primarily affects adults. It can present various challenges in daily life, including relationships and dating. While it may pose some difficulties, it is important to remember that finding a partner and maintaining a relationship is possible for individuals with AOSD.


Challenges in finding a partner:


When it comes to finding a partner, individuals with AOSD may face certain challenges. The unpredictable nature of the disease, including flare-ups and symptoms such as fever, rash, and joint pain, can make it difficult to engage in social activities and meet new people. Additionally, the physical limitations and fatigue associated with AOSD may impact one's ability to participate in certain activities or maintain a regular social life.


Overcoming challenges:


Despite these challenges, there are several ways to overcome them and increase the chances of finding a partner:



  • Open communication: It is crucial to have open and honest communication with potential partners about your condition. Educate them about AOSD, its symptoms, and how it may affect your daily life. This will help them understand your needs and provide support.

  • Join support groups: Connecting with others who have AOSD can be beneficial. Support groups provide a platform to share experiences, gain insights, and build relationships with individuals who understand the challenges you face.

  • Online dating: Utilizing online dating platforms can be a great way to meet new people. These platforms allow you to disclose your condition in your profile, ensuring potential partners are aware from the beginning. It also provides an opportunity to connect with individuals who may have similar interests and understand your situation.

  • Focus on shared interests: When getting to know someone, focus on shared interests and activities that are compatible with your condition. Engaging in activities that are less physically demanding but still enjoyable can help build a connection and maintain a relationship.


Maintaining a relationship:


Once you have found a partner, maintaining a healthy and fulfilling relationship requires effort from both individuals. Here are some tips to help maintain a relationship while managing AOSD:



  • Support and understanding: A strong support system is crucial. Ensure your partner understands your condition and its impact on your life. Encourage open communication and provide them with resources to learn more about AOSD.

  • Adaptability: AOSD symptoms can be unpredictable, and plans may need to change at short notice. Both partners should be adaptable and understanding when it comes to managing flare-ups or unexpected symptoms.

  • Self-care: Taking care of yourself is essential. Prioritize self-care activities that help manage your symptoms and reduce stress. This will not only benefit your well-being but also positively impact your relationship.

  • Quality time: Spend quality time together, engaging in activities that you both enjoy and that are manageable for you. This can help strengthen your bond and create lasting memories.


Conclusion:


While Adult-onset Still's Disease may present challenges in finding a partner and maintaining a relationship, it is important to remember that it is possible to have a fulfilling romantic life. Open communication, joining support groups, utilizing online dating platforms, and focusing on shared interests can help overcome obstacles in finding a partner. Once in a relationship, maintaining understanding, adaptability, self-care, and quality time can contribute to a successful and supportive partnership. With the right approach and support, individuals with AOSD can find and maintain meaningful relationships.


Diseasemaps
4 answers
This is a tough one, I'm not sure what to say, I'm happily married and my husband is extremely supportive and protective of me but I realise not everyone will have the same luck as I've had. That's not to say we've not had our tough times, most especially right after I had my first prolonged stint in hospital. You have to work at this relationship, the same way you would have to if you were healthy.

Posted Feb 25, 2019 by Terry 2550
It's difficult to find someone who is supportive through the process of diagnosis and treatment, but it's not impossible. They have to be willing to be a care taker at any point.

Posted Sep 29, 2019 by Jenifer E 4550
Translated from spanish Improve translation
This is a very challenging, since no one else that you know what you feel, and as is the disease, that is why it is important to share everything with your partner, tell your fears, pain and others.If there is love and support of truth it is possible to continue with your relationship.

Posted Oct 18, 2017 by Paula Andrea 2750

Couple and Adult-onset Stills Disease

Adult-onset Stills Disease life expectancy

What is the life expectancy of someone with Adult-onset Stills Disease?

7 answers
Celebrities with Adult-onset Stills Disease

Celebrities with Adult-onset Stills Disease

3 answers
Is Adult-onset Stills Disease hereditary?

Is Adult-onset Stills Disease hereditary?

7 answers
Is Adult-onset Stills Disease contagious?

Is Adult-onset Stills Disease contagious?

7 answers
Natural treatment of Adult-onset Stills Disease

Is there any natural treatment for Adult-onset Stills Disease?

4 answers
ICD9 and ICD10 codes of Adult-onset Stills Disease

ICD10 code of Adult-onset Stills Disease and ICD9 code

4 answers
Living with Adult-onset Stills Disease

Living with Adult-onset Stills Disease. How to live with Adult-onset Stills...

3 answers
Adult-onset Stills Disease diet

Adult-onset Stills Disease diet. Is there a diet which improves the quality...

6 answers

World map of Adult-onset Stills Disease

Find people with Adult-onset Stills Disease through the map. Connect with them and share experiences. Join the Adult-onset Stills Disease community.

Stories of Adult-onset Stills Disease

ADULT-ONSET STILLS DISEASE STORIES
Adult-onset Stills Disease stories
Diagnosed with systemic-onset JRA in 1990, now known as systemic-onset juvenile idiopathic arthritis (SJIA). After a period of remission for a number of years as an adult I presented to ER with a serious flare and they wouldn't listen to me AT ALL ab...
Adult-onset Stills Disease stories
I began feeling a pain in my ankle at 23. I  had a c-section the year before and in that same year, I was mildly electrocuted twice. I thought I'd mention this, but am told that has nothing to do with the diagnoses. I was on steroids for many years ...
Adult-onset Stills Disease stories
My ankle swelled like I'd been bitten by a spider when I was 7yrs old. Spiking fevers, rash & other swollen joints followed. Many hospitals, tests & Drs later Dx JRA. Adult doses of steroids & many other Rxs continued until I went into remission in m...
Adult-onset Stills Disease stories
Diagnosticada de enfermedad de Still a los 20 años.  Tratamiento con MTX. 
Adult-onset Stills Disease stories
Started in May of 2009, while at a meeting for work I had a fever and overall sick feeling when I got to my hotel room.delt with it slept until the next day and all was fine. Same thing happened the next day in the afternoon and evening. This went o...

Tell your story and help others

Tell my story

Adult-onset Stills Disease forum

ADULT-ONSET STILLS DISEASE FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map