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Living with Alagille Syndrome. How to live with Alagille Syndrome?

Can you be happy living with Alagille Syndrome? What do you have to do to be happy with Alagille Syndrome? Living with Alagille Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Alagille Syndrome

Living with Alagille Syndrome
2 answers
Of course you can live happy while living with Alagilles syndrome. Ive lived with the bad quality of life for the first 16/17 years of my life. I never complained because i filled myself with such a wonderful and caring network of both family and friends. I know there was times where it was a bit too much but this only makes you stronger as a individual and as a group. Just focus on the here and now. The future will come when its suppose to.

A good motto i go by is..
"Everything happens for a reason".

It really helps trust me.

Posted Feb 23, 2017 by Jordan 1000
There is no problem that we can not solve,we must fight with our problems and happiness will be around us.

Posted May 10, 2017 by Blazhe Arsov 1050

Living with Alagille Syndrome

Alagille Syndrome life expectancy

What is the life expectancy of someone with Alagille Syndrome?

5 answers
Celebrities with Alagille Syndrome

Celebrities with Alagille Syndrome

2 answers
Is Alagille Syndrome hereditary?

Is Alagille Syndrome hereditary?

2 answers
Is Alagille Syndrome contagious?

Is Alagille Syndrome contagious?

2 answers
ICD9 and ICD10 codes of Alagille Syndrome

ICD10 code of Alagille Syndrome and ICD9 code

2 answers
Natural treatment of Alagille Syndrome

Is there any natural treatment for Alagille Syndrome?

1 answer
Alagille Syndrome diet

Alagille Syndrome diet. Is there a diet which improves the quality of life ...

3 answers
History of Alagille Syndrome

What is the history of Alagille Syndrome?

1 answer

World map of Alagille Syndrome

Find people with Alagille Syndrome through the map. Connect with them and share experiences. Join the Alagille Syndrome community.

Stories of Alagille Syndrome

ALAGILLE SYNDROME STORIES
Alagille Syndrome stories
My daughter Isabella was diagnosed with alagille syndrome two years ago. She is six years old and I'm the first grade at school. She has had problems associated with alagille since birth. Her itching has been severe since she was a few days old. It h...
Alagille Syndrome stories
My son suffers from ALGS.  He was diagnosed at 3-yrs of age by an excellent cardiologist at Seattle Children's.   Although he does not have the liver complications, there are numerous other systems that we continue to find are affected as he grows:...
Alagille Syndrome stories
Ma femme et mais deux enfants on la maladie on.se bas au quotidien ...
Alagille Syndrome stories
My name is Shambhavi Ravishankar and I'm from Bangalore, India. I live in New Delhi. I am 24 years old. Neither of my parents (or anyone in the family that we know of) have ALGS and I have a younger brother who also doesn't have ALGS. I've moved arou...
Alagille Syndrome stories
Our son was born September 2013. It was almost a year before we had a true diagnosis of alagille syndrome. His only effects his liver. He is on the transplant list and awaiting a phone call.

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Alagille Syndrome forum

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