Stories of Alström syndrome

Alström syndrome stories
My 3 year old Harper, has cone Rod dystrophy since birth and we know the genetic cause and that is Alstrom Syndrome!

Tell your story and help others

Tell my story

View more

Alström syndrome forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Alström syndrome

1 people with Alström syndrome have taken the SF36 survey. Mean of Alström syndrome is 875 points (24 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Alström syndrome

Join the map