Advice of Alström syndrome

Spending a day with a blindfold on gave me a massive insight into what sight loss is really like.

by Carrol Lyon

Tener el diagnóstico claro

by Susana

Tener el diagnóstico claro

by Susana

music

by Harperdess

Botox injections are helping with spasticity

by Angela

Talking to other parents, with children affected by Alstrom Syndrome, is the key to sanity!

by Carrol Lyon

Saber más acerca de la enfermedad

by Susana

Saber más acerca de la enfermedad

by Susana

church

by Harperdess

Finding others affected by one of my two rare diseases

by Angela

Barriers? What barriers?

by Carrol Lyon

Conocer a otra afectada mayor que mi hijo y compartió sus experiencias conmigo

by Susana

Conocer a otra afectada mayor que mi hijo y compartió sus experiencias conmigo

by Susana

family / friends

by Harperdess

family / friends

by Angela