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What is the prevalence of Alternating Hemiplegia Of Childhood?

How many people does Alternating Hemiplegia Of Childhood affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Alternating Hemiplegia Of Childhood

The prevalence of Alternating Hemiplegia of Childhood (AHC) is estimated to be extremely rare, affecting approximately 1 in every 1,000,000 individuals worldwide. This neurological disorder primarily manifests in early childhood and is characterized by recurrent episodes of paralysis that alternate between the left and right sides of the body. AHC can cause a range of symptoms, including muscle weakness, movement disorders, cognitive impairment, and seizures. Due to its rarity, AHC remains a challenging condition to diagnose and manage effectively.



Alternating Hemiplegia of Childhood (AHC) is an extremely rare neurological disorder that primarily affects children. The prevalence of AHC is estimated to be around 1 in every 1,000,000 individuals, making it an exceptionally uncommon condition.


AHC is characterized by recurrent episodes of temporary paralysis that typically affect one side of the body (hemiplegia) and can alternate between the left and right sides. These episodes can last from minutes to days and may be accompanied by a range of other symptoms, including dystonia, movement disorders, cognitive impairment, and seizures.


Due to its rarity, AHC often goes undiagnosed or misdiagnosed, leading to challenges in understanding the true prevalence of the disorder. The exact cause of AHC is still unknown, although it is believed to be related to genetic mutations. Research efforts are ongoing to better comprehend the underlying mechanisms and develop potential treatments.


While AHC is a rare condition, it can have a significant impact on the affected individuals and their families. Raising awareness about AHC and supporting research initiatives are crucial in improving diagnosis, treatment, and quality of life for those living with this challenging disorder.


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Stories of Alternating Hemiplegia Of Childhood

ALTERNATING HEMIPLEGIA OF CHILDHOOD STORIES
Alternating Hemiplegia Of Childhood stories
Lexi has had epilepsy since she was 24hrs old and AHC spells since the first week of life. She was diagnosed with the ATP1A3 d801n mutation when she was 3.5yrs old and since then she has been on flunarizine which helped her some. She started solumedr...
Alternating Hemiplegia Of Childhood stories
Some time after Xavier was born the social worker asked if we would foster him until family dynamics could be improved. This turned into a permanent arrangement when Xavier showed symptoms of AHC at six months and began weekly hospital visits. The ey...
Alternating Hemiplegia Of Childhood stories
I cycle, walk and sell craft items top raise money for research into this disease because my the grand daughter of my oldest friend is a sufferer

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