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Amyloidosis prognosis

What is the prognosis if you have Amyloidosis? Quality of life, limitations and expectatios of someone with Amyloidosis.

Amyloidosis prognosis

Amyloidosis is a rare and complex group of diseases characterized by the abnormal accumulation of amyloid protein in various organs and tissues throughout the body. The prognosis for amyloidosis varies depending on several factors, including the type of amyloidosis, the organs affected, and the overall health of the individual.



The type of amyloidosis: There are several types of amyloidosis, including primary (AL), secondary (AA), hereditary (ATTR), and dialysis-related amyloidosis. Each type has different underlying causes and affects different organs, leading to varying prognoses.



The organs affected: Amyloidosis can affect multiple organs, including the heart, kidneys, liver, spleen, nervous system, and gastrointestinal tract. The prognosis depends on the extent of organ involvement and the severity of damage.



The overall health of the individual: The prognosis is influenced by the individual's overall health, including their age, presence of other medical conditions, and response to treatment. Early diagnosis and prompt treatment can improve outcomes.



Treatment options for amyloidosis include chemotherapy, stem cell transplantation, organ transplantation, and supportive therapies to manage symptoms and complications. The effectiveness of treatment depends on the specific type of amyloidosis and the stage of the disease at diagnosis.



Prognosis: The prognosis for amyloidosis can range from relatively good to poor. Some forms of amyloidosis, such as AL amyloidosis, have a more favorable prognosis if diagnosed early and treated appropriately. However, advanced stages of amyloidosis or involvement of vital organs like the heart or kidneys can significantly impact prognosis.



It is important for individuals with amyloidosis to work closely with their healthcare team to develop a personalized treatment plan and to regularly monitor their condition. Ongoing research and advancements in treatment options offer hope for improved outcomes and quality of life for individuals with amyloidosis.


Diseasemaps
2 answers
bad prognosis when it is diagnosed with advanced deposits in vital organs

Posted Jul 11, 2019 by ESPERARE

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Stories of Amyloidosis

AMYLOIDOSIS STORIES
Amyloidosis stories
Hi , Four years ago , I was diagnosed with Familial Amyloid Polyneuropathy with the mutation Val30Met. In order to halt the progress of the disease I went through a liver transplantation .  I am currently living my life to the maximum by doing ev...
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His name was Sidney Caldwell.  I lost him to AL Amyloidosis in November of 2014
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No real help for AA of unknown cause. In my digestive tract now too. 
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Spring  of 2014 started out with the usual cold. By August/September my proper voice never returned properly and many people thought I had a cold all the time. Went to my GP who sent me to Specialist in my town and from there yo another Specialist/S...
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Like many people with Amyloidosis, I was dismissed by the medical profession.. The symptoms are variable and vague and they mak other illnesses. However in saying that when one googles them all together viola AMYLOIDOSIS comes up as a likely diagnosi...

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