- Hereditary Angioedema
- Interviews
A Hereditary Angioedema interview
How did all start?
I was fifteen when I went to school at nd had a throat and tounge swell . After practice , I went to the doctor and they gave me steroid and said I was allergic to Jam . I went to my regular doctor the next day and was admitted into the hospital for a long journey
Do you already have a diagnosis? How long did it take you to get it?
No, two years
For what medical specialties have you been treated? What has been the most useful specialty for your?
Allergist
What has been the most useful thing for you so far?
All the great med and my family
What have been your biggest difficulties?
Figuring out when I will swell again and not getting over tired .
How has your social and family environment reacted? Have your social or family relationships changed?
Harsh, I am treated like a butterfly aorund and I want to be normal . Everything changed because everyone wants to sometimes take care of me
What things have you stopped doing?
Sport, rigorous exercise, and work .
What do you think about the future?
It will be bright and better for me .
So far, which years have been the best years in your life? What have you done during them?
2027, spending time with family and friends
What would you like to do if you didn’t have your condition?
Band
If you had to describe your life in a sentence, what would it be?
My life is hard but I get through it making everything I do fun no matter what .
Finally, what advice would you give to a person in a similar situation?
Never give up and keep fighting till the end
